Matt SydesOn Day 2 #RedemptionWeek, I share our review of healthcare systems data (HSD; sometimes called routinely-collected healthcare data – RCHD), for clinical trials in the UK, led by @SarahLensen
#routinedata #healthdata
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Looking at the registers of various holders of routinely-collected healthcare data, we found disappointingly few trials had been accessing RCHD / HSD.
Transforming data collection methods is one of the ways we shall transform the conduct of #ClinicalTrials.
2/5
We need to put in place both capability and desire for people to use theses approaches.
This requires collaborative work from many people and much is ongoing including from @HDR_UK @BHFDataScience @NHSDigital @NHSTransform @MRCNIHRTMRP @NIHRresearch @TheBHF @CRUKresearch.
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This review was funded by HDR UK, published 🔓 in Trials in 2020 doi.org/10.1186/s13063-020-04329-8, with corresponding author Sharon Love.
We need a straightforward way to track how reported use of RCHD for trials:
1. changes over time
2. how it compares across countries.
4/5
On Day 3 of #RedemptionWeek, we’ll talk about trial oversight.
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