“Do your own research” has become such a pejorative and loaded expression, but the sad fact is that if you have complex health conditions, if you don’t do your own research, you don’t get help. Especially if you’re a woman.

“When I caught COVID, I thought I'd get back to normal. I was wrong”
https://www.abc.net.au/news/2022-12-19/long-covid-symptoms-treatment-recovery/101751410

Long COVID made me an advocate for myself as symptoms were ignored with treatments hard to access

Long COVID made me retreat from the world, entering into the realm of invisible illnesses where sufferers are ignored, dismissed and struggle to find the help they need.

ABC News
@lindamciver
As somebody pointed out recently, we've left people in an epistemological vacuum 😒
@sabik Cory Doctorow @pluralistic
Yes, absolutely.

@lindamciver Doing my own research on my chronic condition led to me pursuing an education in herbal medicine because it was the only place that was interested in the root cause, not throwing whack a mole bandaids on symptoms.

Being a fat woman means no doctor I've ever met has taken me seriously. None care to consider the weight is a SYMPTOM and not the cause... even when I tell them.

@WestCoastChelle oof. yup. I hear ya. Can we look past my weight, please? Apparently not.
Sometimes the only hope we have is to figure it out for ourselves.
@lindamciver yup, that's where I'm at with my healthcare in general