Does anyone know of any good support groups or support networks for folks with #mecfs that are NOT on Facebook? I'm looking to get away from FB but I need to conect more.
I'm thinking of bulletin boards, wbsites, online communities, that kind of thing. Any ideas?
Thanks! :)
@hollie @chronicillness @disability @mecfs
really a forum over even fediverse platforms would be ideal, something searchable, where you can have discussion be had and then easily pointed back to or stickied.
In the absence or in spite of institutional support, collective knowledge is the best resource for a community.
As someone that works part time, and is relatively secure in their living standards, I'ld be happy to help.
Most of my skills aren't towards forum or website management, and I don't really know much about ME/CFS, so imagine most of what I would be doing is headhunting for advice and funding...
@hollie @chronicillness @disability @mecfs HealthRising is the biggest one I'm aware of: https://www.healthrising.org/forums/ I've seen both really good info and conspiracy theories on there so YMMV
I've also run across Phoenix Rising https://forums.phoenixrising.me/whats-new/posts/816655/
@Hexbolt Oh thanks for that tip!
I was looking at The Mighty today, too. I'm not a big fan of them for Reasons, but I could see how in a pinch it could be a good place to just go and listen to other people say things I'm feeling, to help cope.
Hollie
I'm Rime
e. hashman 
Hexbolt
Lily Rose Health