Something that changed my approach to doctor appointments: bringing actual data instead of trying to remember everything on the spot. When I started logging my symptoms daily, I stopped blanking out the moment they asked how I've been doing. Even just a week of notes makes such a difference.

#ChronicIllness #PatientAdvocacy #SymptomTracking #DoctorAppointment #HealthData

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

• Health & Care Advocacy Designer
• Mast Cell Artist Syndrome
• Chronically ill-ustrating Health Advocacy
• Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

• Notorious Self-Diagnoser
• Health Insurance Reform Enthusiast
• Creatinine-level Checking Creative
• Medical System Subverter
• Bruh They’re a Totally Sick Designer
• Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

Ich werd ja nie müde neue Apps auszuprobieren.

Aktuell: Fimo Health

Eine App, die #LongCovid und #MECFS Betroffenen helfen soll.

Es geht um #Pacing, #Symptomtracking , Wissensvermittlung, Übungen und einfach gucken, wie man klar kommt.

Die App wird von vielen Krankenkassen übernommen. Man braucht kein Rezept, einfach nur die Versicherungsdaten.

Nutzt die hier noch jemand?

#chronischKrank