iamtheworkingmanNov 17

November is Epilepsy awareness month. A battle that is near and dear to my heart and can affect anyone at any age. This has been a life long battle for my wife and as we have found out this month a battle that our 7 year old will now face also.

#Seizure #epilepsy #disorders #EpilepsyAwareness #seizuredisorder #awareness

Show threadcobalt going beige todayJan 13, 2024
Doctors have to have more clues before we know what kind of doctor order what kind of testing. 12 specialists so it gets tricky. It would be so nice if it turned out to be something like a UTI or constipation because they are easier to diagnose and have quick testing. Believe me no doctor wants to be the one who initiates treatment or testing because it’s complicated. #Seizure #SeizureDisorder #Alzheimers #Dementia
cobalt going beige todayJan 13, 2024
The plot thickens. Drew had a seizure this morning and hour ago. It didn’t go full grand mal but lasted 2 minutes. So, more evidence to inform his doctors. The whole thing this week with his Orc rampages is “something is wrong but we can’t figure out what it is”. So far he hasn’t exploded with rage and ate well. Sausage biscuits and gravy and big omelette. Crossing fingers. But it’s only 1:30 pm and the day is long. #Seizure #SeizureDisorder #Alzheimers #Dementia
MelodyJul 15, 2023
Whoa! I just had to block an account because they have a flashing icon in their user name. Some of us with #SeizureDisorder are triggered by flashing lights. Just an FYI
Janet Logan (she/her) 🏳️‍⚧️Jun 30, 2023

@skye

Don't give up. It took years but I finally found a neurologist who believed me. Then an EEG finally confirmed that I was having seizures. I've been on Keppra for about 18 months. After about two weeks it had stopped completely.

#spoonie #SeizureDisorder #seizures

James Connolly (Not really)May 6, 2023
Anyone on here with a #SeizureDisorder who is on #testosterone ? Planning on starting #LowDoseT in a little over a month and wondering if it'll fuck with my #epilepsy.