@TheConversationUK why did anyone need a study to discover that "#LongCovid can stop people doing what they want and need to do"? Ah wait, of course, that would be because #patients have no voice and no one cares about what they have to say. Let's mansplain their experience instead and get them to read about it.

#PatientsRights #Health

What they said isn't even that wrong. Of course I also want to hear from caretakers, of course the psychiatric ward is not a ponycamp. But jesus fucking christ I'm talking about ABUSE not about a misunderstanding.

I didn't have examples, maybe that would have helped. Like the caretaking nurse said to her: "you must be the shame of the family" while she was in an isolation cell. Do you really want to hear the side of the nurse for this? Is this a complicated matter?

The fact that my family can't imagine how bad it is, that they think it's probably a nuanced story... what do I even do with this.

#psychiatry #ableism #MedicalAbuse #PatientsRights

🧵 (continuing)

I'm telling all this to my family. What did they say:

• brother: I wonder what those caretakers have to say about this story, like what's their side.
• mother: It must be very complicated to take care of someone in a psychosis.

Sooooooo: "both sides" and "it's complicated".

#psychiatry #ableism #MedicalAbuse #PatientsRights

🧵 (continuing)

The media reporting on her death: "the stigma was so big", "her mental health issues were playing up"... referencing to the abuse and her courtcase only minimally. I was so pissed about this. She literally stated in her video's that she doesn't care about taboos, that she wrote books about this topic because she wants to talk about awareness and improvements. Her life's work wasn't about stigma and mental health, it was about medical abuse.

#BrendaFroyen #psychiatry #ableism #MedicalAbuse #PatientsRights

🧵 (continuing)

So I told them about what happened with Brenda Froyen:

Brenda Froyen was a Belgian activist for patients' rights, specifically in psychiatry. In 2012, she had a psychosis and wrote a book about it to raise awareness, and then wrote a second book in 2016 about her criticism on the psychiatry sector. For me she was thé locally famous activist, she was the one who got asked to talk on tv when some debate was happening etc.

Last year, she relapsed and got hospitalised again. Nothing had changed, and she was retraumatised. She posted a video on social media about her experiences in the isolation cell, and she got sued by the hospital for defamation. So she sued them for medical abuse. Summer 2024 she had a crowdfunding for the legal costs and she was posting calls for first-hand stories of abuse in psychiatric wards.

She died by suicide a month ago.

#BrendaFroyen #psychiatry #ableism #MedicalAbuse #PatientsRights

"This new rule actively undermines Congress's clear statutory meaning when #HIPAA was passed, & it reflects the Biden administration's disrespect for the #law," #Texas AG #KenPaxton [& general POS] said.
#HHS …said in a stmnt that the rule "stands on its own - #women should be able to access #legal #ReproductiveHealthcare w/o their #medical records being used to track them or their doctors for liability."

#ReproductiveRights #abortion #AbortionIsHealthcare #WomensRights #privacy #PatientsRights