LadyUnicornEJG's StrugglesI love my kids but I just can't take it right now. To the point I'm hiding in the damned bathroom to avoid the 1 yr old screaming for me because he sees me but I'm not holding him. The (nonverbal) 3 yr old is screeching like something is seriously wrong with zero problems I can find. All I wanted to do was play a game more than 5 minutes at a time, so I could remember what I was doing!
Queen HazelOne thing that helped me reframe my guilt about leaning on my family for childcare due to chronic illness is that no parent should feel guilty for needing to put their child in daycare so they can work. It will not harm the bond between us. And I see her constantly throughout the day and do as much as I can. I'm not working, but I'm currently full time disabled. Hoping to go back to part time disabled. She is constantly being passed from lap to lap of people who adore her
#parentingwhiledisabled
#parentingwhiledisabled
I think the hardest part of the past 6-8 weeks of severe chronic illness is that I can't accurately judge how many spoons I have. I easily overdo it and I'll be doing a thing, thinking I'm fine, and then I crash into a brick wall and have to go lay down for the rest of the day. I'm used to being very in touch with my body so this is frustrating and makes planning especially hard.
#chronicillness
#parentingwhiledisabled
#chronicillness
#parentingwhiledisabled
Naga@EveretteM Thank you.
We had ours *after* my diagnosis, but before I knew much about it, and it was so-called "mild" (nowadays I teeter on the mild/moderate border, and I know that's a good scenario, and I'm lucky to be able to make a good living working half-time recliner).
Ailbhe#ParentingWhileDisabled I remembered yesterday that it also means using my mobility scooter to slalom along a wide pavement while my 8yo hangs on behind in Heelies or rollerblades. Nyoooooom!
Testing the #ParentingWhileDisabled hashtag after seeing @Alyshelchi post about the issue.
#Dragonlet is nearly 6. So far we haven't said much more than "Daddy gets tired faster than other daddies," but "Daddy isn't feeling well enough for that right now" is feeling more and more hollow. And he's noticed it's always his mom when he's meeting up with his friends.
It feels like it's getting to be about time to talk to him about disability in broader, age-appropriate terms. But I'm wrestling with it.
Complicating factor in my psyche: My father was a stay-at-home dad for me after going on disability with #Fibromyalgia (before it was named) when I was 3.
Ailbhe#ParentingWhileDisabled includes your 6yo putting a straw in a juice box and holding it to your mouth while you drink
Kids minding your crutches beside you while you pay at the counter
Kids arguing over who gets to push your wheelchair
Kids arguing over who has to push your wheelchair
Adrenaline getting you running across a space and lifting a child in distress or danger, when ordinarily you can't walk that far or lift a litre of milk
So you spend six weeks in bed
Ducky@Alyshelchi hello! 👋🏻 I have chronic pain which causes mobility problems, I have lifelong depression & anxiety, and now have long COVID to add to the fun. 🙄 I've got two kids aged 13 and 10.
How are you doing today?
#ChronicPain #depression #anxiety #LongCovid #parenting #ParentingWhileDisabled
Ronja A-R (e/em/eir ; hen)@ashleyspencer @actuallyautistic
Southern Finland. We have had snow and below freezing temperatures for a few days now and that helps my mood so much! Plus the dog loves it ❤️ (heart)
#ActuallyAutistic #ActuallyADHD #CPTSD #SAD #ParentingWhileDisabled
I have orders from my therapist to work on finding a community of other chronically ill moms. I really do need this. I'm struggling so much with fatigue and pain, not to mention the depression and other mental illness symptoms.
Gonna throw some hashtags out there and see if anything sticks.
If you have a group or a discord or something outside here that's thriving, please check me out and consider adopting me because I'm lost.
#chronicallyill
#parenting
#disabled
#parentingwhiledisabled