VereeshLyrica and thc-p lead to hypersomnia, and I'm fine with that. Just woke up after a 20 hour "nap" feeling sorta OK. It's an illusion, of course. Very important not to just start doin stuff like some me/cfs noob. So much self discipline in this seemingly lazy illness. It's hard not to run around doing all the things when it feels like I have energy for once. Danger, Will Robinson. #mecfs #non24hoursleepwakedisorder #chronicillness #disability #sleep #spoonie #spoonielife #medication
RubyI suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder
yuuki ゆうき(金野裕希)
I have just woken up from eighteen blissful hours of #sleep partly thanks to delta 8. I feel actually rested, which is quite a rarity for folx with #mecfs #chronicillness #chronicpain #disability #non24hoursleepwakedisorder :blink: I'm sure I haven't missed anything important. My dreams were repetitive, and sort of anxious, but well within tolerance.
LanieOkay, this is just stupid! One of the benefits of having a #website is that people can access your services at any time, day or night, right? Well, I just went to the #SocialSecurity website to try and get a benefit verification letter, which I need because I'm trying to reestablish a #VocationalRehabilitation case. I clicked "Sign In" and was greeted by this message:
This service is not available at this time.
Please try again during our regular service hours (Eastern Time):
| Day | Service Hours |
|-----|--------------|
| Monday-Friday | 4:15 a.m. - 1:00 a.m. |
| Saturday | 5:00 a.m. - 11:00 p.m. |
| Sunday | 8:00 a.m. - 11:30 p.m. |
| Federal Holidays | Same hours as the day the holiday occurs. |
If you need immediate assistance:
- You may call us Monday through Friday: 8:00AM - 7:00PM at: 1-800-772-1213
- If you are deaf or hard-of-hearing, call our toll-free TTY number: 1-800-325-0778
This of the website limitation is especially frustrating for me because I have a #Non24HourSleepWakeDisorder and an unpredictable schedule. It feels like the website is designed without thinking about people like me who need flexibility.
Has anyone else out there had similar issues with government services or other websites?
#Vent #Venting #Disability #ChronicIllness #Accessibility #DisabilityRights #InclusiveDesign #GovernmentServices #PublicServices
@[email protected] @[email protected] @disabilityjustice @accessibility @chronicillness @spooniechat @spoonies
Lanie CarmeloWow, I've done a lot while I've been awake. Finished a #JavaScript project on #freeCodeCamp, did the drills for lesson 11 of my #Braille #proofreading course, finished and submitted the lesson 11 exercises, talked to quite a few people on here and created a group for #Christians, checked #email, played a little of each of the #incrementalGames I have going right now, and completed another short #JS project on freeCodeCamp. I'm wiped out and think I'm going to get ready to go to bed. It's after 1:00 PM here but I have no #sleep schedule because of multiple #sleepDisorders, so going to bed in the middle of the day isn't unusual for me.
#learningToCode #learningToProgram #coding #programming #BrailleProofreading #gaming #blind #chronicIllness #NEISvoid #non24HourSleepWakeDisorder #non24 #sleepApnea #disability
#learningToCode #learningToProgram #coding #programming #BrailleProofreading #gaming #blind #chronicIllness #NEISvoid #non24HourSleepWakeDisorder #non24 #sleepApnea #disability