I received a new diagnosis today! Hurray!
I now also have #Meniere's!
Yay! I have another disease/condition to put in my collection!
Today, I can add #Meniere's to the list of "how my body really hates me"
Día mundial del síndrome de Ménière 2026 - Somosdisc@

Cada 7 de febrero se celebra el día mundial del síndrome de Ménière, este año bajo el lema "Vivir con Ménière es vivir luchando".

Somosdisc@

Hola Titánicos, cada 7 de febrero se celebra el día mundial del síndrome de Ménière, para dar a conocer esta enfermedad tan incapacitante que afecta a nuestro oído, y nuestra calidad de vida.

https://somosdisca.es/dia-mundial-del-sindrome-de-meniere-2024/

#síndromedeMénière #Ménière #meniere #problemasdeoido #Disability #disabilities #visibilidad #discapacidad #DiscapacidadAuditiva #salud #enfermedad #enfermedadesraras #enferemdadrara #discapacidad #cuidados #vertigo #mareos #titanicos #titan #gentetitanica #somosdisca

Día mundial del síndrome de Ménière 2024 - Somosdisc@

Cada 7 de febrero se celebra el día mundial del síndrome de Ménière, visibilizando esta enfermedad tan incapacitante que afecta a nuestro oído

Somosdisc@

Hola Titánicos, cada 7 de febrero se celebra el día mundial del síndrome de Ménière, para dar a conocer esta enfermedad tan incapacitante que afecta a nuestro oído, y nuestra calidad de vida.

https://somosdisca.es/dia-mundial-del-sindrome-de-meniere-2024/

#síndromedeMénière #Ménière #meniere #problemasdeoido #Disability #disabilities #visibilidad #discapacidad #DiscapacidadAuditiva #salud #enfermedad #enfermedadesraras #enferemdadrara #discapacidad #cuidados #vertigo #mareos #titanicos #titan #gentetitanica #somosdisca

Día mundial del síndrome de Ménière 2024 - Somosdisc@

Cada 7 de febrero se celebra el día mundial del síndrome de Ménière, visibilizando esta enfermedad tan incapacitante que afecta a nuestro oído

Somosdisc@

Ik loop als #Meniere patient tegen dezelfde problemen aan.

https://nos.nl/l/2506123

Record aan medicijnentekort in Nederland zorgt voor 'schrijnende situaties'

"Het zou in Nederland niet van je inkomen moeten afhangen of je toegang kan hebben tot noodzakelijke medicatie", zegt een woordvoerder van Patiëntenfederatie Nederland.

NOS Nieuws
If you have #cervicalinstability and cervicogenic #dizziness, or #meniere disease, be aware: #covid can make it way worse. I basically can't move my head and I'm blocked in a bed.
I can only hope this is not a permanent damage, unfortunately there's little to no literature about it (as usual, when it comes to dizziness).
Stay safe.

Systematic review and meta-analysis evaluates the relative performance of #MRI descriptors in the #diagnosis of #Meniere's disease (MD). (Steve Connor et al.)

#EuropeanRadiology #RadiologyHeadToToe

Read the full article here 👉 https://link.springer.com/article/10.1007/s00330-023-09651-8

Delayed post gadolinium MRI descriptors for Meniere’s disease: a systematic review and meta-analysis - European Radiology

Objectives Delayed post-gadolinium magnetic resonance imaging (MRI) detects changes of endolymphatic hydrops (EH) within the inner ear in Meniere’s disease (MD). A systematic review with meta-analysis was conducted to summarise the diagnostic performance of MRI descriptors across the range of MD clinical classifications. Materials and methods Case-controlled studies documenting the diagnostic performance of MRI descriptors in distinguishing MD ears from asymptomatic ears or ears with other audio-vestibular conditions were identified (MEDLINE, EMBASE, Web of Science, Scopus databases: updated 17/2/2022). Methodological quality was evaluated with Quality Assessment of Diagnostic Accuracy Studies version 2. Results were pooled using a bivariate random-effects model for evaluation of sensitivity, specificity and diagnostic odds ratio (DOR). Meta-regression evaluated sources of heterogeneity, and subgroup analysis for individual clinical classifications was performed. Results The meta-analysis included 66 unique studies and 3073 ears with MD (mean age 40.2–67.2 years), evaluating 11 MRI descriptors. The combination of increased perilymphatic enhancement (PLE) and EH (3 studies, 122 MD ears) achieved the highest sensitivity (87% (95% CI: 79.92%)) whilst maintaining high specificity (91% (95% CI: 85.95%)). The diagnostic performance of “high grade cochlear EH” and “any EH” descriptors did not significantly differ between monosymptomatic cochlear MD and the latest reference standard for definite MD (p = 0.3; p = 0.09). Potential sources of bias were case-controlled design, unblinded observers and variable reference standard, whilst differing MRI techniques introduced heterogeneity. Conclusions The combination of increased PLE and EH optimised sensitivity and specificity for MD, whilst some MRI descriptors also performed well in diagnosing monosymptomatic cochlear MD. Key Points • A meta-analysis of delayed post-gadolinium magnetic resonance imaging (MRI) for the diagnosis of Meniere’s disease is reported for the first time and comprised 66 studies (3073 ears). • Increased enhancement of the perilymphatic space of the inner ear is shown to be a key MRI feature for the diagnosis of Meniere’s disease. • MRI diagnosis of Meniere’s disease can be usefully applied across a range of clinical classifications including patients with cochlear symptoms alone.

SpringerLink
Mijn KNO-arts kent me zo goed dat hij al voor het raam staat te zwaaien als ik aan kom lopen op de parkeerplaats. #Meniere
Weer enorm duizelig. Het ging toch al twee maanden goed. Donderdag prikken halen. #Meniere