⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.

#203 Oculta entre las sombras, la luz sigue ahí 🐺https://domandoallobo.blogspot.com/2016/08/203-oculta-entre-las-sombras-la-luz.html #blog

#DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers

RNA Autoimmune Shield (Hudson Institute / Nature Immunology)

RNA fragments so tiny they were dismissed as "biological waste" turn out to be your body's master switch against autoimmune disease.

As a medical school professor, I've taught that RNA needs to be at least 20 bases long to matter. Nature Immunology just proved us wrong.

Scientists discovered that RNA fragments of only 1-3 bases -- 6X shorter than Nobe... https://hudson.org.au/news/tiny-rna-fragments-unlock-massive-autoimmune-treatment-potential/

#Autoimmune #RNA #Inflammation #Lupus #MetabolicHealth

Llanelli teen invited to Parliament after years of agony from ‘invisible’ illness

Fifteen‑year‑old Olivia, who was diagnosed with Lupus at just 11, joined children from across the UK at Westminster for the launch of Inside Arthritis — a week‑long exhibition showcasing artwork created by young people living with arthritis and musculoskeletal conditions.

The event, hosted in the Upper Waiting Hall, urged MPs to rethink what arthritis really looks like, with Liberal Democrat MP Manuela Perteghella backing the campaign.

Olivia’s journey has been anything but easy. Before her diagnosis, she endured years of unexplained joint pain and repeated trips to A&E. She felt isolated, unable to join in with her favourite hobbies, and even faced cruel rumours at school when medication caused her hair to fall out.

But everything changed when she found Arthritis UK’s Young People and Families Service and its Joint Creativity art programme — a lifeline that helped her manage both the physical and emotional toll of her condition.

“Being able to colour and express myself helped with the pain in my hands — and helped me cope,” Olivia said. “Growing up with Lupus meant I didn’t always fit in. But meeting others like me showed that things really can get better.”

Lupus affects around 70,000 people in the UK and can strike at any age, yet awareness remains low — something Arthritis UK says urgently needs to change.

The exhibition also marked the countdown to WORD Day (World Young Rheumatic Disease Day) on March 18, which raises awareness of young people living with rheumatic conditions.

Arthritis UK Chief Executive Deborah Alsina MBE said hearing directly from young people like Olivia is vital.

“Inside Arthritis gives parliamentarians the chance to understand the stigma and challenges these young people face,” she said. “Nearly 60% of children with Juvenile Idiopathic Arthritis have needed mental health support. Current services simply don’t reflect the reality of their lives.”

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Nach der Ruhe in den letzten 6 Wochen war diese prall gefüllt, fast ein Social Overload ;). 
Das Wochenende aber noch gewohnt beschaulich, ich lief jeden Tag ein Stück irgendwo rum, um mich zu trainieren.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA

https://www.lupus-live.de/?p=15111

Nanopartículas biodegradables reprograman células T in vivo con ARNm y podrían abaratar alternativas a CAR‑T; en ratones agotaron 95% de células B en 24 h. https://aidoo.news/noticia/WNOMzx

#Ciencia #Salud #Biotecnologia #Oncologia #Lupus

Nanopartículas biodegradables reprograman células T in vivo con ARNm y podrían abaratar alternativas a CAR‑T; en ratones agotaron 95% de células B en 24 h. https://aidoo.news/noticia/WNOMzx

#Ciencia #Salud #Biotecnologia #Oncologia #Lupus

Is there a word that describes not getting the bad news you expected, then getting the bad news you didn't expect, then getting good news that reverses all that?

The expected bad news: lupus myelopathy.

The unexpected bad news: I'm looking at an in patient complicated surgery because parts of my vertebrae have worn away because #lupus.

Unexpected good news (this morning): after reviewing the new x-rays, I'm a candidate for a simple outpatient decompression procedure!

💃 💃 💃 💃 💃

Am Wochenende war ich wieder zuhause. Ein Kind war unterwegs, eines krank. Ich buk mein 2. Sauerteigbrot (welches schlechter gelang als das erste - jemand Tipps?), schrieb, nähte, spielte und sah fern. Diese Ruhe und die Zeit für mich (auch wenn sie meist zerstückelt ist) sind immer noch unwirklich und kaum annehmbar nach all dem Chaos. Manchmal sitze ich einfach da und denke: Ach.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA

https://www.lupus-live.de/?p=15102