Daniel Aleksandersen4d ago
Tell an iOS app developer about a bug in their HealthKit ingestion, and they'll fix it in days. Tell them about an export bug, and it'll never get fixed. #DataSilo #HealthData #Interoperability
R Consortium6d ago

Next week! R Consortium workshop:

Use AI to Build and Share Insights from Health Data

The workshop will focus on reproducible, auditable workflows for generating insights from health data, building:

• Quarto reports
• Quarto dashboards
• Shiny apps
• AI-powered apps with QueryChat

June 11, 2026
12:00–3:00 PM ET

Register: https://r-consortium.org/webinars/use-ai-to-build-and-share-insights-from-health-data.html

#RStats #RConsortium #HealthData #AI #Quarto #Shiny #Positron

Nathalie FriasMay 29

A device in the wall. Always listening. No camera. No button. No guaranteed consent. Before your family says yes, read this.
nathaliefrias.net
#ElderCare #NursingHomeReform #PatientRights #HealthData #SilentVoices

https://nathaliefrias.net/2026/05/29/the-ear-in-the-room-who-really-benefits-when-ai-listens-to-your-loved-one/?utm_source=mastodon&utm_medium=jetpack_social

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Silent Voices Elder Advocacy
R ConsortiumMay 26

R/Medicine continues with a hands-on R Consortium workshop on AI + health data.

Garrett Grolemund, co-author of R for Data Science, creator of the Lubridate R package, and ASA award-winning educator, will show how to use Positron, AI agents, Quarto, Shiny, QueryChat, and Posit Connect to build and share reproducible health data insights.

Use AI to build and share insights from health data
June 11, 2026
12pm–3pm ET

Register:
https://r-consortium.org/webinars/use-ai-to-build-and-share-insights-from-health-data.html

#RStats #HealthData #AI #Quarto #Shiny

de.NBI & ELIXIR GermanyMay 21
🌍 How can we close the infrastructure gap in exposome research?
Environmental exposures shape our health, but data remains fragmented. Join our upcoming seminar to discover CLUES—a geospatial framework that systematically links open-access environmental data to individual health cohorts in a privacy-compliant way.
📅 June 24, 2026 | 10:00 CEST (Online)
🔗 https://www.denbi.de/training-courses-2026/2096-integrating-environmental-and-health-data-with-clues
#Exposome #HealthData #EnvironmentalHealth #CLUES #DataScience #Webinar
Ali Clarke May 21

My health centre is soon moving their patient portal from Manage My Health. No surprise there I guess!

The new one is called Well, and has the ‘added benefit’ of ‘no stored copy of your records outside the practice system’. I haven’t heard of it so it will be interesting to see what it’s like 🧐

#HealthData

Show threadSu_GMay 15

@ChrisMayLA6
Resonates: “the software is over-sold & not nearly as useful or reliable as presented” - as always with this general type of ‘service’ (seen it all before in different circumstances); good to see some pushback. Health-related data is complex, complicated, nuanced; requires sophisticated expert tools and actual experts to derive meaningful results… all things that US companies are not known for & some might say have zero to little experience with… and for sure not in a good way.

#oversoldSoftware #NHS #Palantir #InformationInfrastructure #dataMining #pushback #healthData #privacy

stefania mauriziMay 14

There is not even any pretense of #democracy in Europe:
#UK citizens, doctors, human rights orgs oppose #Palantir's access to their #healthData, but the British government goes ahead

Read #BritishMedicalJournal on #Palantir:

https://www.bmj.com/content/393/bmj.s941.full

GP data: BMA plans patient information campaign to warn of dangers in wake of king’s speech

The chair of the BMA’s General Practitioners Committee England (GPC England) has attacked government plans1 to force GPs and hospitals in England to share patient data that were set out in the king’s speech on 13 May. Addressing the annual conference of UK local medical committees in Belfast, Katie Bramall said that the BMA would launch a patient information campaign to warn against the dangers of the move. Bramall was responding to the NHS Modernisation Bill, which will introduce a single patient record with the aim of bringing together a patient’s medical records in one place. The proposed legislation will compel data sharing, transferring elements of data ownership and responsibility away from individual GP surgeries. The BMA opposes the move, arguing that existing mechanisms already allow …

The BMJ
dave cyklMay 12

Remind me why #England ever thought that exfiltrating very sensitive health data to #Palantir would be a good idea? 😠

#NHS #NHSEngland #privacy #PersonalData #HealthData #GDPR

https://www.theregister.com/databases/2026/05/12/nhs-england-confirms-palantir-staff-can-access-patient-data/5238712

NHS England confirms: Palantir staff can access patient data

Tech firm's employees can get an 'admin' role letting them into the National Data Integration Tenant... and its identifiable information

theregister
R ConsortiumMay 11

Missed R/Medicine 2026? Watch the recording of “You Should Probably Map That: Introduction to Geospatial Analysis in R.”

This 1-hr demo, led by Anjile An, Weill Cornell Medical College, introduces practical geospatial analysis in R and shows how mapping can help reveal patterns, communicate results, and make health data more actionable.

https://youtu.be/eSZ9FB5Dqnk

#RStats #RMedicine2026 #Geospatial #HealthData