I can't help but think that the conservatives who run some of our critical institutions have really let us down, with their recklessly rapid adoption of digital systems;

https://www.rnz.co.nz/news/health/616376/pharmacy-scrambles-to-scrub-internet-of-patients-private-messages

Using digital platforms for health information and communications ought to have been a slow, careful process, preceded by thorough investigation of privacy protections like ... I don't know ... keeping personal data structurally separate from publishing data 🤦‍♂️

#privacy #HealthData

Pharmacy scrambles to scrub internet of patients' private messages

A Wellington pharmacy at the centre of a data leak says sensitive patient information has now been scrubbed from the internet.

RNZ

When Viruses are Gold

A handful of African nations are rejecting American health aid in 2026, outraged by the Trump administration’s demands for access to private health records and even minerals in exchange for lifesaving medicine…While the Democratic Republic of Congo, the epicenter of the Ebola crisis, has struck a deal with the United States, Zimbabwe, Ghana and Zambia have said no or dragged out negotiations... Talks with Zambia have stalled as the nation challenged Trump’s terms for a $2 billion […]

https://law-in-action.com/2026/06/18/when-viruses-are-gold/

Fitness trackers sell aggregate workout and location data to insurance companies and real estate firms in some markets. https://indigoprivacy.com/subscribe #privacy #fitness #healthdata #indigoprivacy
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Indigo Privacy

New blog post: Bloody CGM Acronyms

Every time I see 'CGM' in the news, my brain jumps to blood sugar, not container ships. Let's talk about the tech that actually matters.

https://rhodzy.com/blog/bloody-cgm-acronyms

#cgm #continuousglucosemonitoring #biohacking #diabetestech #automation #healthdata

rhodzy.com

Tell an iOS app developer about a bug in their HealthKit ingestion, and they'll fix it in days. Tell them about an export bug, and it'll never get fixed. #DataSilo #HealthData #Interoperability

Next week! R Consortium workshop:

Use AI to Build and Share Insights from Health Data

The workshop will focus on reproducible, auditable workflows for generating insights from health data, building:

• Quarto reports
• Quarto dashboards
• Shiny apps
• AI-powered apps with QueryChat

June 11, 2026
12:00–3:00 PM ET

Register: https://r-consortium.org/webinars/use-ai-to-build-and-share-insights-from-health-data.html

#RStats #RConsortium #HealthData #AI #Quarto #Shiny #Positron

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Silent Voices Elder Advocacy

R/Medicine continues with a hands-on R Consortium workshop on AI + health data.

Garrett Grolemund, co-author of R for Data Science, creator of the Lubridate R package, and ASA award-winning educator, will show how to use Positron, AI agents, Quarto, Shiny, QueryChat, and Posit Connect to build and share reproducible health data insights.

Use AI to build and share insights from health data
June 11, 2026
12pm–3pm ET

Register:
https://r-consortium.org/webinars/use-ai-to-build-and-share-insights-from-health-data.html

#RStats #HealthData #AI #Quarto #Shiny

🌍 How can we close the infrastructure gap in exposome research?
Environmental exposures shape our health, but data remains fragmented. Join our upcoming seminar to discover CLUES—a geospatial framework that systematically links open-access environmental data to individual health cohorts in a privacy-compliant way.
📅 June 24, 2026 | 10:00 CEST (Online)
🔗 https://www.denbi.de/training-courses-2026/2096-integrating-environmental-and-health-data-with-clues
#Exposome #HealthData #EnvironmentalHealth #CLUES #DataScience #Webinar

My health centre is soon moving their patient portal from Manage My Health. No surprise there I guess!

The new one is called Well, and has the ‘added benefit’ of ‘no stored copy of your records outside the practice system’. I haven’t heard of it so it will be interesting to see what it’s like 🧐

#HealthData