Hey folks  

This is a query targeted at any folks who experience any kind of neuropathic pain for any reason(s), to any degree, and with any frequency, and who've found meds and/or treatment options to reduce, manage, or otherwise cope with the pain.

Please note that we're not asking for ourselves, but for friends who have various forms of this and seem to be having no luck getting decent or timely care through official medical routes 🥺😔

Our own experience of pain has been very different, so we cannot extrapolate anything that has worked for our own issues to neuropathic pain. Relatively-speaking, we've been very fortunate.

We are aware of what the medical organisations say, but we'd much rather hear from folks with personal experiences of any kind, particularly atypical ones that work where others have failed.

As we understand it, commonly-prescribed meds like duloxetine (or any similar SNRI) and gabapentin are often ineffective in many folks, though please correct us if we're wrong there.

We don't have any insight on things like:

Thank you in advance for any answers 🫶  

#NeuropathicPain #disability #disabled #ChronicPain #AskFedi #healthcare #TCA #SNRI #gabapentinoids #gabapentin #pregabalin #neuralgia #meds #GenuinelyAsking #NoReplyGuys

Neuropathic pain - Wikipedia

UGH. why didn't you reply over the weekend?

oh. you did.
or...
what?

ahh. gotta love the confusion and ... just general stupidity that i've inherited from #pregabalin
i love you, #American way of life.

Lasting effect too. Last time it didn't go away for 8 - 10 years. Diff med, same family of meds #gabapentinoids

Maybe some of y'all get behind me on this? Make something happen today (beyond the pull request [etc.]). Please.

My healthcare professionals, and #Pfizer have caused me brain damage by prescribing, and ENCOURAGING me to continue taking it despite my report of hallucinations and psychosis.

Following is an example of what promoting #Lyrica looks like:

https://social.vivaldi.net/@ExTradersG[email protected]/112410861031472860

@christymarx

#addiction #braindamage #Gabapentinoids #lyrica #Gabapentin #memoryloss #dimentia

Vivaldi Social

"Her daughter's Lyrica #addiction characterizing her as a once effervescent young woman who began to lose both her spark and control of her behavior — often falling asleep while standing up and acting in other erratic ways — before tragically dying of an #overdose in 2020.

#Gabapentinoids cost #Medicare $2.1 billion in 2016, as more than 850,000 Medicare beneficiaries were prescribed the drug in that year alone.

#Pfizer claims #Viatris a company created in 2020, is responsible for #Lyrica." - September 30, 2021

"Her daughter's Lyrica #addiction characterizing her as a once effervescent young woman who began to lose both her spark and control of her behavior — often falling asleep while standing up and acting in other erratic ways — before tragically dying of an #overdose in 2020.

#Gabapentinoids cost #Medicare $2.1 billion in 2016, as more than 850,000 Medicare beneficiaries were prescribed the drug in that year alone.

#Pfizer claims #Viatris a company created in 2020, is responsible for #Lyrica."