An update on my ongoing bout with chronic #migraine 💜 and #FND 🧡

Healing is a full time job, yo!

Now, about how I sound…

https://www.instagram.com/reel/DWrJeTNkTVL/?igsh=MWtiY25rc2t1NThhMg==

Rob Rossi on Instagram: "An update on my ongoing bout with chronic #migraine 💜 and #FND 🧡 Entering third month, I’m deep into the treatment phase. This past week I had two cognitive physical therapy sessions for arm tremor, cognitive speech therapy for my verbal communication, a third nerve block injections session for head and neck, EMDR and talk therapies. Healing is a full time job, yo! Now, about how I sound…"

6 likes, 1 comments - real_robrossi on April 3, 2026: "An update on my ongoing bout with chronic #migraine 💜 and #FND 🧡 Entering third month, I’m deep into the treatment phase. This past week I had two cognitive physical therapy sessions for arm tremor, cognitive speech therapy for my verbal communication, a third nerve block injections session for head and neck, EMDR and talk therapies. Healing is a full time job, yo! Now, about how I sound…".

Instagram
#FND has at times changed my voice. It has shaken my body. It has sapped my energy. It has turned light and noise into blunt weapons that bruise. Most recently, it’s done all of that, AND robbed me of memories. (2)

Today is FND Awareness Day in the UK. Functional Neurologic Disorder causes serious neurologic impairment in patients. Mine, like many cases, was caused by a triggering incident. I was assaulted.

Most folks haven’t heard of FND so it may be helpful to say OG DXs like shell shock and nervous breakdown could be FND. Tommy, in the movie Tommy seems to have FND.

In general folks can be wary of a DX they never heard of. Now you’ve heard of it.

https://neurosymptoms.org/en/

#FND #Neurology

Functional Neurological Disorder (FND) – A Patient's Guide to FND

Cognitive speech therapy & second nerve block sessions UNLOCKED.

#migraine 💜
#fnd 🧡
#chronicillness 🫶🏻

Good morning folks.

It was a lot cooler last night and I slept so well, I also started the Travis Baldree book that was sitting in the tbr pile, so the child will get the book soon and can stop nagging me for it.

Today is FND awareness day in the UK. Trust me to get diagnosed with it, just in time for the awareness day 😂 Honestly wish I looked as healthy as purple sparkle brain person in the picture 😂 For me, FND is pretty shit and affects every minute of my day, the more tired I am, the worse it is. Some days I can "trick" my body into behaving, but those days are few and far between. The biggest impact it has on me is functional limb weakness and speech difficulties, oh and the tremor is pretty bloody awful too. The gaslighting from the GP for years has been pretty awful too, had me thinking I was losing my mind. It took me being hospitalised with a suspected stroke for my GP to take me seriously and refer me to neurology, then the year long wait for the appointment. Getting diagnosed was a huge relief, even if neuro don't think I will get any better, at least they think I won't get any worse (or not anytime soon). So yeah, I'm going to share about awareness day, and then promptly forget it and go about my day.

Time for more coffee, Cozy Grove and then I might venture outside.

Have a lovely day everyone 😊

#GoodMorning #FND #FunctionalNeurologicalDisorder

In the past I've mentioned that my wife (of 40 years) suffers from Functional Neurological Disorder.... now in a meeting of two aspects of my private life, my friend's daughter (who is a GP & blogger) has written an excellent guide to FND for those unaware or only vaguely aware, of the condition (which I usually describe as a software problem not a hardware one).

If you're interested in knowing more about FND then I can heartily recommend Charlotte's blog.

#FND #health
https://thehealthandhealingnarrative.com/2026/03/09/what-is-functional-neurological-disorder/

Understanding Functional Neurological Disorder (FND): A Complete Guide

Functional Neurological Disorder (FND) is a common neurological condition — yet many people have never even heard of it. Even more concerning, it is still widely misunderstood. I was reminded of th…

The Health and Healing Narrative

Met with movement disorder neurologist Monday. Looking at some new therapies to try.
Grateful for my (expanding) medical team

#FND
#migraine
#chronicillness

Week 4 update on latest #FND flare — and a word about #migraine disorder 🧡💜 https://www.instagram.com/reel/DVRkiHgkf3c/?igsh=MTBsajVzNDd5cWswag==
Rob Rossi on Instagram: "Into Week 4 of my #functionalneurologicaldisorder flare. Here’s an update: 🔸 Speech is improving. 🔸 Arm tremor remains. I’ll be seeing a neurologist who specializes in movement disorders next week. 🔸 Screen time remains troublesome. But thanks to my FL41 lenses from @shadysideeyeassociates I have been able to spend very limited time on the computer working on my resume and LinkedIn profile. 🔸 MRI results were good. Doctors believe memory issues, which remain troublesome and scary, are due to frontotemporal dementia that won’t be permanent. 🔸 I’ve been able to get some temporary (as in an hour or so) relief from #FND symptoms by exercising at @f45_training_southhills and EMDR therapy session with Anneke Shuster. Also tried a restorative yoga session at @yogasix_southhills that helped a lot. 🔸 Fatigue continues to set in fast and requires lengthy “naps.” Binaural beats are my new BFF. 🔸 My parents have been amazing, and my extended family is super supportive. 🔸 Thanks to my friends who continue to check in with texts, calls, cards, and messages. I’ll try to get back to everyone. It’s just I only have so many spoons at the moment. 🔸 Shoutout to Dana Kirkpatrick at @calm_pittsburgh for helping me navigate a lot of the medical paperwork. And the same goes for @cmusuneggi & @cpmusuneggi for… well, I don’t know what I’d do without their multifaceted help. 🔸 Medical team is adjusting meds and altering treatments. They think we caught this early-ish. So now let’s hope the #migraine attacks continue to slow. With gratitude, Rossi 🧡💜 PS Ajax and Glowbug are giving me all the cuddles 🐈‍⬛🐈"

9 likes, 2 comments - real_robrossi on February 27, 2026: "Into Week 4 of my #functionalneurologicaldisorder flare. Here’s an update: 🔸 Speech is improving. 🔸 Arm tremor remains. I’ll be seeing a neurologist who specializes in movement disorders next week. 🔸 Screen time remains troublesome. But thanks to my FL41 lenses from @shadysideeyeassociates I have been able to spend very limited time on the computer working on my resume and LinkedIn profile. 🔸 MRI results were good. Doctors believe memory issues, which remain troublesome and scary, are due to frontotemporal dementia that won’t be permanent. 🔸 I’ve been able to get some temporary (as in an hour or so) relief from #FND symptoms by exercising at @f45_training_southhills and EMDR therapy session with Anneke Shuster. Also tried a restorative yoga session at @yogasix_southhills that helped a lot. 🔸 Fatigue continues to set in fast and requires lengthy “naps.” Binaural beats are my new BFF. 🔸 My parents have been amazing, and my extended family is super supportive. 🔸 Thanks to my friends who continue to check in with texts, calls, cards, and messages. I’ll try to get back to everyone. It’s just I only have so many spoons at the moment. 🔸 Shoutout to Dana Kirkpatrick at @calm_pittsburgh for helping me navigate a lot of the medical paperwork. And the same goes for @cmusuneggi & @cpmusuneggi for… well, I don’t know what I’d do without their multifaceted help. 🔸 Medical team is adjusting meds and altering treatments. They think we caught this early-ish. So now let’s hope the #migraine attacks continue to slow. With gratitude, Rossi 🧡💜 PS Ajax and Glowbug are giving me all the cuddles 🐈‍⬛🐈".

Instagram
Into THIRD week of latest flare of #FND
Received some encouraging information about my memory issue, and as of recording I’ve gone two consecutive days without needing a #migraine injection!
Focusing on positives. Thanks to all who have reached out. 🧡💜 https://www.instagram.com/reel/DU_zmvmkeCe/?igsh=MTJ0azEyaHAwa29mdw==
Rob Rossi on Instagram: "Into THIRD week of latest flare of #functionalneurologicaldisorder Received some encouraging information about my memory issue, and as of recording I’ve gone two consecutive days without needing a #migraine injection. Getting healthy is a full-time job, which is good because I’m out of work. Focusing on positives. Thanks to all who have reached out. 🫶🏻 🧡💜💪🏻"

1 likes, 0 comments - real_robrossi on February 20, 2026: "Into THIRD week of latest flare of #functionalneurologicaldisorder Received some encouraging information about my memory issue, and as of recording I’ve gone two consecutive days without needing a #migraine injection. Getting healthy is a full-time job, which is good because I’m out of work. Focusing on positives. Thanks to all who have reached out. 🫶🏻 🧡💜💪🏻".

Instagram