My Exchange with an FND Physical Therapy Specialist

By David Tuller, DrPH When I write about functional neurological disorder (FND) or functional neurological symptoms, I sometimes get feedback from Zachary Grin, a physical therapist in New York. As an FND specialist, he disagrees with pretty much everything I write about the topic.  At first, I tried to engage with Zachary in a good-natured manner. I had some sympathy for him because he’s a young gay guy—well, much younger than me, at any rate—and had publicly expressed having had some difficulty with his family over the issue. But that period was short-lived. I blocked him on X quite a while ago when he accused me of “lying” about the PACE trial.  Specifically, he accused me of lying when I pointed out that the authors had lowered their outcome thresholds so dramatically that trial participants could be simultaneously “recovered” at baseline on two key self-reported measures—fatigue and physical function. Instead, he parroted the PACE authors’ response to this criticism—that no one was “recovered” at baseline because there were four separate recovery variables, and participants had to meet the designated thresholds for all four of them.  This was a bogus response that avoided the facts. I have never claimed that anyone was “recovered” fully at baseline by the PACE definition of the term. What I have pointed out—accurately—is that some people met the “recovery” thresholds at baseline for two of the four “recovery” metrics. Even after I explained Zachary’s error, he continued to insist that he was right and I was “lying.” That was the last straw for me. He was only the second person I have ever blocked on the platform—and I haven’t blocked anyone since.  In general, life is too short to pay attention to Zachary. But sometimes he forces himself on my attention by commenting on a post—as …

https://trialbyerror.org/2026/05/27/my-exchange-with-an-fnd-physical-therapy-specialist/

My Exchange with an FND Physical Therapy Specialist – Trial By Error

Cognitive Speech Therapy homework

Time: 08:28.48

My short term memory and speech issues are partly linked, and exercises like this have not been easy. But I’ve made some strides, at least with the exercises, over last couple of weeks.

#FND 🧡
#Migraine 💜
#ChronicIllness 🫶🏻

My Request for Correction of Causal Claim for Functional Neurological Symptoms

By David Tuller, DrPH This morning I sent the following letter to CNS Spectrums, a neuroscience journal published by Cambridge University Press. Subject line: “Correction needed for etiological statement in ‘Functional neurological symptoms occur commonly in healthy adults: implications for the pathophysiology of FND.'” Depending on the response, or lack of one, I might also formally submit the letter for publication. ********** Dear Editor— In the introduction of a recent paper in CNS Spectrums, “Functional neurological symptoms occur commonly in healthy adults: implications for the pathophysiology of FND,” the authors write that “functional symptoms are neurological symptoms which are generated by abnormal brain processing.” (FND refers to “functional neurological disorder.”) However, this description represents the authors’ theory about what is causing such symptoms. It is not a proven fact, and should not be disseminated as if it were. In reality, the authors do not know what causes functional neurological symptoms or FND and are offering their best guess. But the statement conveys a level of certainty that cannot be justified based on the existing state of evidence. It would be different if the authors provided data to support this categorical claim, but they do not. Nor does the article cited by the authors—a 2022 paper in Lancet Neurology, “Functional Neurological Disorder: New Phenotypes, Common Mechanisms.” That paper, at least, framed the issue in a more cautious and appropriate manner by referring to the “current understanding” of the factors that many investigators believe are causing these complex conditions. It is harmful to the scientific process when authors present their theories as documented and indisputable facts. The definitive assertion about the cause of functional neurological symptoms should therefore be corrected. (I have cc’d the corresponding author and the editors-in-chief.) Thank you for your consideration of this matter. Best–David David Tuller, DrPH Senior Fellow in Public Health and …

https://trialbyerror.org/2026/05/25/my-request-for-correction-of-causal-claim-for-functional-neurological-symptoms/

My Request for Correction of Causal Claim for Functional Neurological Symptoms – Trial By Error

So FND Is Not Only a Brain “Software” Issue After All…

*Kim H, a FND patient with whom I have frequently exchanged views, has left a comment below. I urge others to read it. I disagree with her interpretation, but I certainly think she has a right to express her perspective. However, I stand by my post. ********** By David Tuller, DrPH For years*, experts in functional neurological disorder (FND) have categorically asserted that the condition is strictly a “brain network” disorder, representing an issue solely with the brain’s so-called “software,” or functioning, rather than its “hardware,” or structural elements. According to this framework, structural elements of the brain, or other organic or pathophysiological processes, played no role in causing the condition. [*I initially wrote “decades” and have corrected it.] The well-known FND website, neurosymptoms.org, has long popularized this notion—and continues to do so. The site currently proclaims on its home page that FND is “caused by a PROBLEM with the FUNCTIONING of the nervous system” and that it is “a ‘software’ issue of the brain, not the hardware (as in stroke or MS).” From this perspective, the “hardware” is irrelevant. Given this view, anyone suggesting that the etiology of FND might involve something other than “software” problems or malfunctioning brain networks has been routinely dismissed as engaging in “dualistic” thinking. As I understand it, the purported “dualism” involved the belief that somatic symptoms were likely caused by unidentified pathophysiological dysfunctions, not just aberrant brain “software.” This accusation of “dualism” always struck me as backwards, since it was the FND proponents who themselves advanced the rigid “software” vs “hardware” dichotomy. Isn’t it “dualistic” to argue for a complete split between “software” and “hardware”? Or am I the confused one here? (I assume the FND folks would say yes.) Whatever. In the introduction to a recent collection of papers on FND in the …

https://trialbyerror.org/2026/05/20/so-fnd-is-not-only-a-brain-software-issue-after-all/

So FND Is Not Only a Brain “Software” Issue After All… – Trial By Error

🚜🌾 El Gobierno de México presentó el programa “Volver a Crecer”, con el que casi 60 mil productores podrán liquidar o reestructurar sus deudas de la FND.

📌 Habrá descuentos, liberación de adeudos y posibilidad de acceder nuevamente a créditos.

👩‍🌾 Más de 13 mil mujeres productoras serán beneficiadas.
🏛️ Gobierno de México
¿Qué opinas de este apoyo para el campo mexicano? 👀

#VolverACrecer #ClaudiaSheinbaum #CampoMexicano #Productores #FND #México #Querétaro

Más…

https://amanecerqro.com/volver-a-crecer-apoyara-a-casi-60-mil-productores-del-campo/

Volver a Crecer apoyará a casi 60 mil productores del campo - Amanecer Querétaro

Programa Volver a Crecer ayudará a casi 60 mil productores con liquidación y reestructura de créditos agropecuarios en México.

Amanecer Querétaro

May is #MentalHealthAwarenessMonth

I’m diagnosed with #ADHD (inattentive), anxiety, and depression. And I’m finding it particularly challenging during my current battle with chronic #migraine and #FND to stay on top of my mental health. So I’m headed to talk therapy today.

💚

The Disabled Leads Bundle! I'm a disabled writer, and disability representation is important to me. there is overlap between their disability experiences and my own.

In this bundle, you can get Airphibious, a swashbuckling fantasy, or The Wood, a coming-of-age fable, for 75% off. Each book is $0.50 or $1 for both.

#FNDaware #FND #disability #disabled #writing #writer #indiebooks #books #literature #novella #novelette #fantasy #fable #adventure #ComingOfAge

https://itch.io/s/184970/disabled-leads

My eyes roll back.
I’m losing control top down –
Trapped.

A passenger in a car
speeding down the highway
with no driver.
Concrete brick
on the gas pedal,
no hands on the wheel –
Trapped.

I can hear voices around me,
feel a hand in mine.
My head lolls.
I try to speak,
but there’s a thick wad of cotton
stuffed down my throat.
Forget about speaking,
I can’t even breathe –
Trapped.

(This poem - continued in comments - discusses my experience with #FND seizures)

#FNDAware #poetry

FND + mobility aids = empowerment. For many living with Functional Neurological Disorder, these tools aren’t defeats, they’re freedom. Use what helps you move through the world. 💙

#FND #FunctionalNeurologicalDisorder #MobilityAids #FNDAware #ChronicIllnessSupport

April is FND Awareness Month! I acquired functional neurological disorder a few years ago as a result of COVID infection. I experience intermittent paralysis, muscle weakness, brain fog, tremors, and non-epileptic seizures as a result.

You can learn more about FND at FND Hope (linked below)

#FNDAware #FND #disability #disabled #covid #longCovid

https://fndhope.org/fndaware/