Pitäis varmaan joskus laskea paljonko on kulunut rahaa kolmen vuosikymmenen sairastamisen aikana. Nyt meni apteekkiin 60 eikä siinä ole edes koko kk lääkkeet. Ja minun tuurilla 2/5 lääkkeistä ei kuulu Kelan korvauksen piiriin....
#terveys #neurologia #dystonia #lääkkeet #kipukroonikonelämää

@EF I have lower limb #dystonia. More information can be found out about it here, but feel free to ask any questions

xx
https://www.dystonia.org.uk/pages/faqs/category/lower-limb-dystonia

Lower limb dystonia

Other names: Focal foot dystonia / Focal leg dystonia Type: Focal but may lead to generalised dystonia Lower limb dystonia is a neurological movement disorder characterised by continuous or intermittent muscle contractions which cause abnormal, often painful, repetitive movements with the leg, foot or toes. Lower limb dystonia can affect how a person walks or runs and may require the use of mobility devices such as crutches, walkers, or wheelchairs. Lower limb dystonia is a neurological movement disorder and should be diagnosed and treated by a neurologist specialising in movement disorders.

Dystonia UK

Oh no, the Botox is wearing off again. Bad twisty in bed 😫.

Shuffled down the stairs on my bum with one leg locked

Fu #Dystonia

#Introduction

Hello squirrels,

I am almost as famous as that other Geri, but unlike her, I have a neurodegenerative disease called #Dystonia, but it is only others who see me as disabled. I am also a big-bottomed, anarchist, green type and a connoisseur of fine wine, although I will quaff any old rubbish.

I am a poor speller and swear more than a decent person ought to.

I love people who love other people and hate those who do not.

I mean no harm.

*snogs*

I am pleased the Assisted Dying Bill will run out of time.

It was poorly written.

Many do wish it, and I extend my sympathy, but I have spent the last 8 years in pain, so no, it's not for me.

As always AML xx

#PersonalToot

#Dystonia

"In the UK, the Police and Criminal Evidence Act 1984 (PACE) Code C mandates that the custody officer ensure detainees receive necessary medical attention and medicines. Under these laws, authorities are legally liable if they knowingly withhold essential treatment that leads to harm"

Things to keep in your handbag

I have #Dystonia
You need to get the following medicines for me. Thank you.

Looking forward to my brain operation

#dystonia

lool

#Introduction

Hello squirrels,

I am almost as famous as that other Geri, but unlike her, I have a neurodegenerative disease called #Dystonia, but it is only others who see me as disabled. I am also a big-bottomed, anarchist, green type and a connoisseur of fine wine, although I will quaff any old rubbish.

I am a poor speller and swear more than a decent person ought to.

I love people who love other people and hate those who do not.

I mean no harm.

*snogs*

Terapeuttinen kirjoittaminen

Näppäimistö on ollut jo vuosia minulle hyvä keskustelukumppani. Olen aina pitänyt kirjoittamisesta, joskaan mielikuvitukseni eikä kärsimätön luonteeni ei ikinä antaisi minun kirjoittaa mitään pidem…

Arkipäiväinen
@gimulnautti @kgaiji @sandradejong @neutrinoceros @kathimmel Hello squirrels, I am almost as famous as that other Geri, but unlike her, I have a neuro-degenerative disease called #Dystonia. I live my life on four wheels but it is only others that see me as disabled. I am also a big-bottomed, anarchist, green type and a connoisseur of fine wine although will quaff any old rubbish. I am a poor speller and swear more than a decent person ought to. I mean no harm. Please. https://gofund.me/ce7eac923