@dajb thanks for this, that sounds like it. It was probably just being used in a really poor way, the interaction with the advisor was terrible and there was no apparent desire to provide advice, it was effectively a summarisation service, which arguably some people want, but the nuance of thinking about how my needs fit with descriptors was what I was after. Yes, I'll try and send them feedback when I've got my form in. #DisabilityLife
Sarcoidosis doesn’t just hit your lungs or heart—it comes for your calendar, energy, and bank account. Staying alive shouldn’t be a subscription.
https://www.buzzsprout.com/2548730/episodes/18680105
#Sarcoidosis #ChronicIllness #HealthcareCosts #DisabilityLife #Podcast
The High Price of Staying Alive: Sarcoidosis, Chronic Illness, Insurance, and America’s Health Care Circus. - Thoughts While Surviving Chronic Illness: Navigating Life With Sarcoidosis

Ever notice how sarcoidosis doesn’t just come for your lungs (or your heart, if it’s feeling ambitious)—it comes for your calendar, your energy, and your bank account too? This is the story of what “good insurance” looks like when the bills have s...

Buzzsprout

Redesigning Your Writing Process for Unique Needs

The content emphasizes the importance of creating a personal workflow that accommodates individual health needs, especially for those facing disabilities or chronic conditions. It advocates for flexibility and self-compassion in writing and business practices, encouraging adaptation based on one’s circumstances rather than conforming to external expectations or comparisons.

https://dreamspacestudio.net/redesigning-your-writing-process-for-unique-needs/

How Penny Tasks (Like Community-Building Posts) Add Up Over Time

Real progress often stems from small, consistent actions, especially for disabled and neurodivergent creators. Engaging with community through simple tasks like comments and shares fosters connection and builds authenticity. These "penny tasks" accumulate to create sustainable growth, reinforcing the importance of showing up, no matter how small the effort may seem.

https://dreamspacestudio.net/how-penny-tasks-like-community-building-posts-add-up-over-time/

Let’s retire the word “lazy.” You’re not lazy for needing breaks, rest, or creative adjustments. You’re building a workflow that works for you, and that’s powerful.
#SelfCompassion #DisabilityLife
You’re allowed to budget your energy and focus on what actually matters—especially now.
What’s one thing you did (or let yourself not do) today that deserves to be counted as a win?
Share or just notice. It all adds up.
#SmallWins #DisabilityLife

Energy Budgeting and The Good Thing Principle

The world feels overwhelming, impacting our mental and physical well-being, especially for those with chronic challenges. The Good Thing Principle encourages recognizing daily positives, however small, to cultivate hope. Coupled with energy budgeting, this practice helps manage limits and fosters self-respect, enabling individuals to navigate tough times with resilience.

https://dreamspacestudio.net/energy-budgeting-and-the-good-thing-principle/

What a Sustainable Workflow Looks Like for Chronic Pain: Real-Life Examples

Sustainable workflows prioritize adapting work habits to individual needs, especially for neurodivergent and disabled individuals. By recognizing that conditions and energies fluctuate, one can create a supportive, flexible routine that fosters productivity without burnout. Embracing rest and automation are essential strategies for maintaining creativity and honoring personal limits, ultimately leading to a more fulfilling work experience.

https://dreamspacestudio.net/what-a-sustainable-workflow-looks-like-for-chronic-pain-real-life-examples/

Tonight’s workout courtesy of Squeaker:
He refused to leave his "pocket" bed, so I had to pick up the whole bundle — dog + bed — and wrestle it through a kennel door just wide enough for the bed. Eleven pounds of pure Min Pin dead weight, and I was out of breath by the end. 🐾💪
#DogLife #MinPin #StubbornPets #DisabilityLife #Accessibility #Humor #Christian #dogs #dogsofmastodon @dogs
This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility