Mastodawn

Massive breakthroughs with my own journey with disability today, and the realisation that I was treating a whole load of(mundane)tasks as things just I had to do before "real work" on other things. Truth is, it's ALL work. It all takes energy, especially as a disabled guy. I feel like this is a pivotal shift, and will help me be able to allocate my energy better, as well as feel like I am achieving things better.

#disability #disabled #fibromyalgia #cptsd #chronicpain #chronicfatigue

kit lecter 🦇👹20h ago

I was feeling so well this morning that I decided it was high time to have a wash and change the bedlinens. yay for the accomplishment! the unexpected counter cleaning (including moving the bloody heavy microwave), not so much.
I am now paying for the exertion. pain is not so good. but I have clean linens and am wearing clean indoor clothes instead of PJs, so it is fine. I don't plan on doing anything else physically. now let's just hope the fatigue doesn't hit too and it let's me get some non moving stuff done.

#CFSME #MECFS #ChronicFatigue #ChronicPain #Spoonie #SpoonieLife #PostExertionMalaise

ira 23h ago

i slept very twisted and now my arm hurtz af #chronicpain #pain #sleeping #communicationcards #actuallyautistic

Wulfric 1d ago

Today I got a diagnosis for a genetic condition that has no treatment other than pain management. It wasn't a surprise since I was diagnosed with a related condition 40 years ago and my kids were diagnosed with it over the past couple of years.

I'm currently trying to figure out if it is a relief to have the formal diagnosis so I can say "See it isn't in my head." or if it's depressing that after all this time I have the truth but it ultimately makes no difference because I'll still have to do everything I've been doing. It probably won't stop people from telling me to try yoga either.

#ChronicPain #ChronicIllness

ira 2d ago

here we go again.... #headache #chronicpain #chronicillness #aac #actuallyautistic

Lorraine 💜🦜🎶🍀🤘2d ago

#3GoodThings

My physical therapist recommended a lotion for my pathetic thumbs, so I bought some. It's actually meant for arthritis, but it helped the tenosynovitis a little. I'll take it! 🖐️ 🤘 (Diclofenac)

Sherbert allowed me to clean her cage again today. She just watched the whole time! My little angel-face! 👼 🦜

It's been cloudy and raining intermittently all day, didn't get above 70° (21°C). A perfect day for me!

#ChronicPain #parrot #pet #PerfectDay

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biyokea 2d ago

Sur un autre sujet : un article bien réfléchi sur la douleur chronique chez les jeunes trans, dans une perspective biopsychosociale. Rien de révolutionnaire et puis un peu déprimant, mais si les jeunes trans (et les trans en général) souffrent plus de douleurs chroniques que les autres, c'est notamment en raison de la ✨ transphobie systémique ✨.
L'article aborde plusieurs thèmes et exemples de comment ça se manifeste et par quels mécanismes précisément. Ça implique aussi des pistes pour améliorer la situation (protections légales, luttes contre les discriminations, actions en faveur de l'accès au soins : de transition mais aussi de PEC de la douleur, facteurs de résilience au stress minoritaire, etc.).
Bonus il est assez court et abordable.
J'en profite pour partager cette super revue systématique[2] sur les effets biologiques du stress minoritaire chez les minorités sexuelles et de genre, je joins 2 graphiques qui synthétisent les résultats

[1] : Chronic pain in transgender and gender-diverse youth: a biopsychosocial perspective. Han GT et al., 2026. https://doi.org/10.3389/fpain.2025.1709268
[2] : Minority stress in relation to biological outcomes among sexual and gender minority people: a systematic review and update. Flentje A et al., 2025. https://doi.org/10.1007/s10865-024-00539-6
#minoritystress #chronicpain #trans #transyouth #transyouthcare #transphobia