I was told everything was removed. It wasn’t.
What was left behind cost me months of answers.
This is what medical gaslighting looks like. 🖤
linktr.ee/skylanarissa
#ChronicIllness #Disability #EDS #EhlersDanlosSyndrom #CRPS #DRGStimulator #MedicalNegligence #MedicalGaslighting

https://dreamingofdragonscom.wordpress.com/2026/04/04/saturday-health-update-the-drg-saga-medical-gaslighting-and-the-cost-of-being-left-behind/

Saturday Health Update: The DRG Saga, Medical Gaslighting, and the Cost of Being Left Behind

I was told everything was removed. It wasn’t. What was left behind turned into months without answers, seizures without warning, and a surgery I should never have needed. This is what happens when …

The Crippled Cryptid.
The person I fantasize about the most is real, alive and has touched my body. My chiropractor in downtown Montreal, who is of Vietnamese extraction. #chronicillness

@disabledvoices @mutualaid

$87 due by april 7th!! Food is needed

3 days to go!*
I severely need any help i can get. Beyond appreciative of anything thats been sent thus far.

V venmo.com/d_fay
P paypal.me/peach77
K https://ko-fi.com/ellespeaks

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #poverty #disabledmutualaid #diabetic

Support Elle

Support Elle

Ko-fi

Travel didn’t disappear after chronic illness — but it did change. This is the story of how I slowly found my way back to exploring the world, with practical shifts that made it possible again. #SlowTravel #ChronicIllness #AccessibleTravel #TravelTips

https://thechronictraveler.com/pre-trip-energy-planning/?utm_source=flipboard&utm_medium=activitypub

Posted into Travel with Chronic Illness | The Chronic Traveler @travel-with-chronic-illness-the-chronic-traveler-CareyOnTravels

What mainstream media isn't covering: Today's disability news →

📰 3 curated stories on disability rights, accessibility & workers' rights.

🔥 Today's Headlines:

1. The Disability Bulletin
2. ‘Namesake’ Tackles a Colonial Legacy. And a Nation’s Resistance
3. A Calgary Museum Reinvents Itself

🔗 Full digest: https://3mpwrapp.pages.dev/blog/#curated-daily

#3mpwrApp #DisabilityRights #Accessibility #ChronicIllness #WorkersRights #Canada #NeurodiversityCelebration

Blog

News, updates, and stories from the 3mpwr community.

3mpwr App

@britt

I live w/MS, 3 kinds of arthritis, 2 other autoimmune things. They cost me HUGE amounts of brainspace/energy.

I'm 60, not done living yet. But only now have I even had *time/space* to live creative dreams I've had since age 5—my life's purpose.

For 45yrs, I've served family, employers, community—always fighting for creative time/space for myself.

Now I make short films, podcast, publish—FINALLY! Except aging has arrived, adds to my constant pain/exhaustion 🤬

#ChronicIllness #Unfair

An example of how two things can be true and exist simultaneously and the complexity of holding that:

1) Occasionally, I smile proudly, knowing I achieved one of my life goals of getting an offer of admission to the University of Victoria.

2) I can’t accept it. I can’t go. I’m too chronically ill. I don’t have proper healthcare. I can’t fight against my body anymore. Insert complex grief.

Holding space for both accomplishment and defeat at once is a complex experience. I wanted to share and shine a light ☀️ on this experience if you’re also walking along a similar path.

🫶🏻
#ChronicIllness #MentalHealth

I wanted to go.
My body said no.
Now I’m home fighting the guilt on top of the pain.

If you deal with chronic pain, do you push through… or stay home?

#ChronicPain #ChronicIllness #InvisibleIllness #Spoonie #SpoonieLife #ChronicPainAwareness #DisabilityAwareness

50+ sources. One feed. Zero ableism. Today's roundup 👇

📰 28 curated stories on disability rights, accessibility & workers' rights.

🔥 Today's Headlines:

1. The Disability Bulletin
2. Manitoba Government Supports Harvest Manitoba's First Steps Infant Care Program
3. When Police Kill, Civilian Voices are Sidelined in News Reporting

📚 Stay informed: https://3mpwrapp.pages.dev/blog/#curated-daily

#3mpwrApp #DisabilityRights #Accessibility #ChronicIllness #WorkersRights #Canada #...

Blog

News, updates, and stories from the 3mpwr community.

3mpwr App
People ask how someone with sarcoidosis stays positive day after day. It isn’t motivation, inspiration, or some magical personality trait. It’s something quieter, and most people miss it. #sarcoidosis #chronicillness https://www.buzzsprout.com/2548730/episodes/18833255-the-strange-math-of-chronic-illness-what-sarcoidosis-taught-me-about-expectations
The Strange Math of Chronic Illness: What Sarcoidosis Taught Me About Expectations - Thoughts While Surviving Chronic Illness: Ramblings From a Chef Whose Body Constantly Rebels

People sometimes ask how anyone living with sarcoidosis can stay positive day after day. The answer isn’t motivation, inspiration, or some magical personality trait. It’s something quieter… something most people miss entirely.

Buzzsprout