Spent today editing and uploading a video for WheelyHappyDays — Sha shaving her head. Hair's been thinning for months due to FND, ME/CFS, fibromyalgia, menopause, and stress. She decided to take control of it rather than keep watching it go.
The blog post is up with the full story. Worth a read if any of that sounds familiar.
I'm not one for gushing. But I'm quietly very proud of her.
https://wheelyhappydays.uk/daily-journal-monday-6th-april-2026-going-bald-on-my-own-terms/
Progress doesn’t always look like word count. Sometimes it’s quiet, messy, and still worth everything. 🕯️🐾 #WritingCommunity #ChronicIllness linktr.ee/skylanarissa
The Science for ME forum has posted the latest News in Brief (Mar. 30 - April 5), a weekly summary of ME/CFS and Long Covid news plus upcoming events:
https://www.s4me.info/threads/news-in-brief-march-2026.49238/#post-685296
Today I got a diagnosis for a genetic condition that has no treatment other than pain management. It wasn't a surprise since I was diagnosed with a related condition 40 years ago and my kids were diagnosed with it over the past couple of years.
I'm currently trying to figure out if it is a relief to have the formal diagnosis so I can say "See it isn't in my head." or if it's depressing that after all this time I have the truth but it ultimately makes no difference because I'll still have to do everything I've been doing. It probably won't stop people from telling me to try yoga either.
My arthritis knocked me flat on Tuesday. Couldn't button a shirt. Spent the day on the couch with three rescue dogs and a heating pad.
My content system published to 40 accounts anyway. LinkedIn, Pinterest, blog, all of it, running on autopilot.
Built the whole thing in two weeks. Best investment I've made this year.
#BuildInPublic #ChronicIllness #ContentAutomation #IndieWeb #SoloBuilder
This afternoon has been occupied, and a little unusual.
MrsVark made a big decision today. I think it's turned out well. I just wish I was a better photographer.
\ˈthē-ˈˈärd-ˌvärk\
T.W.S.C.I.
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Sky
Ahimsa
Wulfric
Hassan Khader Ali Yousef
Chad Dyar
Bowie