Ki Empress 纪皇后Jun 12, 2025

Streaming tonight at 8:30 PM EST.
Show these families love and help spread awareness for EB! Follow me on my art journey, help me reach beyond borders. 💜Kiki
#artist #artstreamer #art #artistoftiktok #xiaohongshu #followme #ebawareness #butterflychildren #butterflyskin #Tiktoklive #fypシ #family #friends #love #outreach #advocacy

https://www.tiktok.com/live/event/7515214466129068078?_r=1&enter_from=share_link&share_from_user_id=7383379706879345710

Butterfly🦋Series-蝶🦋戦士 - TikTok LIVE Events

0 viewers have registered for this event | Continuing the series, and spreading awareness about EB (epidermolysis bullosa).For these next few days I will be drawing as much as possible on stream.

OsteoarthriticAutisticJun 23, 2023

Graeme Souness: Butterfly skin girl is the ‘most special human being’ | The Independent
https://www.independent.co.uk/news/uk/graeme-souness-edinburgh-epidermolysis-bullosa-brian-cox-english-channel-b2362640.html

#Souness
#ButterflySkin
#IslaGrist
#EpidermolysisBullosa
#IslasDad

Graeme Souness: Butterfly skin girl is the ‘most special human being’

The footballer, who swam the channel for charity, said the girl who inspired him is the ‘most special human being’ he has ever met.

The Independent
OsteoarthriticAutisticMay 22, 2023

Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB | DEBRA UK
#EB
#GraemeSouness
#EnglishChannelSwim
#IslaGrist
#EpidermolysisBullosa
#ButterflySkin
#NHS
#DEBRA
#Charity
#CharitySwim
https://www.debra.org.uk/news/graeme-souness-swimming-the-english-channel-to-raise-11m-to-stop-the-pain-of-eb

https://donate.giveasyoulive.com/fundraising/debraswim

Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).

DEBRA UK