Hey peeps, got a little time to assist in some research? add your voice.
I've previously completed a survey and have confirmed with James and Melanie that it's OK to share on Mastodon.
Boosts appreciated.

#autoimmune #lupus #flare #IBD #RheumatoidArthritis #mctd #uctd #sjogrens #SystemicSclerosis #PolymyalgiaRheumatica #MultipleSclerosis #ThyroidDisease #AutoimmuneEncephalitis #AntiphospholipidSyndrome #Type1Diabetes

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We’re now conducting a new survey, 'INSPIRE-Flare', to build

#Brain on Fire!

Clinical Guideline on Evaluation and Treatment for Autoimmune Encephalitis

#AntiNMDAR Encephalitis Clinical Practice Guideline
Improving Time to Diagnosis, Treatment, and Hospital Length of Stay

“A clinical practice guideline (CPG) was created to standardize evaluation and treatment for patients with suspected anti-methyl-d-aspartate receptor (#NMDAR) #autoimmuneencephalitis (AE), the most common AE in children. The objective of this study was to evaluate the CPG effect on time to #diagnosis, #treatment, and hospital length of stay (LOS).”

Sorry for Paywall (#AAN Profit Center!)
#neurology
https://www.neurology.org/doi/full/10.1212/CPJ.0000000000200218

👩‍🔬 👨‍🔬 How does scientific research progress and why does it sometimes feel like it moves so slowly?

@Catrina_Hacker answers these questions in this post written as part of our collaboration with the International Autoimmune Encephalitis Society. She explains what makes biomedical research so complicated and breaks down some of the practical components of getting scientific research funded and published.

https://autoimmune-encephalitis.org/know-little-about-autoimmune-encephalitis/

#sciComm #autoimmuneEncephalitis #neuroscience #science #research