(((Cindy Weinstein)))Sep 22, 2023
On #WorldAlzheimer'sDay, I want to thank #BruceMiller, #neurologist extraordinaire, for listening w/such #empathy to stories about my father, Jerry, so he could get to know him thru my memories & write #FindingTheRightWords w/me. What a gift he gave me - helping me honor my dad in the way I needed to - & the world. His knowledge of #dementia & ability to communicate it in a way that we can all understand is invaluable. Here is a photo of my dad laughing at his dad, my pop, who is being silly.
(((Cindy Weinstein)))Sep 22, 2023
On #WorldAlzheimer'sDay, I want to thank #BruceMiller, #neurologist extraordinaire, for listening w/such #empathy to stories about my father, Jerry, so he could get to know him thru my memories & write #FindingTheRightWords w/me. What a gift he gave me - helping me honor my dad in the way I needed to - & the world. His knowledge of #dementia & ability to communicate it in a way that we can all understand is invaluable. Here is a photo of my dad laughing at his dad, my pop, who is being silly.
(((Cindy Weinstein)))Sep 21, 2023
On #WorldAlzheimer'sDay and everyday, let's do everything we can do to support research into #dementia, to help people with #dementia, to break the #stigma, and to help caregivers. On this last, here's a slide that may be helpful from a presentation I gave at #Emory's Goizueta's #Alzheimer's Disease Research Center. And here's a link to the entire presentation. https://www.youtube.com/watch?v=AhBsk1RLiFE
Breaking the Dementia Stigma with Dr. Cindy Weinstein | Emory BrainTalk Live

YouTube
(((Cindy Weinstein)))Sep 21, 2023

It's #WorldAlzheimer'sDay. How I love and miss and grieve for my dad every day and will forever. Let's make pictures like this -- the suffering so physical and emotional -- a remnant of the past. I cannot wait/we cannot wait for that to happen.

#EndAlz
#Love
#Trauma
#grief

(((Cindy Weinstein)))Sep 21, 2023

It's #WorldAlzheimer'sDay. How I love and miss and grieve for my dad every day and will forever. Let's make pictures like this -- the suffering so physical and emotional -- a remnant of the past. I cannot wait/we cannot wait for that to happen.

#EndAlz
#Love
#Trauma
#grief

(((Cindy Weinstein)))Sep 19, 2023

Must-read essay on the financial costs of #dementia, in this case #LewyBody #dementia, and the utter cruelty and absurdity of #Medicare defining #dementia like this: “We don’t consider dementia a medical issue." Tell that to the person suffering with the #disease; tell that to the caregiver.

https://www.huffpost.com/entry/dementia-diagnosis-medicare-financial-hardship_n_64efa175e4b0e2c4bd6b51c3

#WorldAlzheimer'sMonth
#EndAlz

My Dad Was Diagnosed With Dementia. Medicare's 7-Word Response Baffled Me.

"I’m simply a daughter who cares about her parents. And I’m a citizen looking around at our irrational health care system and feeling helpless, enraged and scared."

HuffPost
(((Cindy Weinstein)))Sep 19, 2023

Must-read essay on the financial costs of #dementia, in this case #LewyBody #dementia, and the utter cruelty and absurdity of #Medicare defining #dementia like this: “We don’t consider dementia a medical issue." Tell that to the person suffering with the #disease; tell that to the caregiver.

https://www.huffpost.com/entry/dementia-diagnosis-medicare-financial-hardship_n_64efa175e4b0e2c4bd6b51c3

#WorldAlzheimer'sMonth
#EndAlz

My Dad Was Diagnosed With Dementia. Medicare's 7-Word Response Baffled Me.

"I’m simply a daughter who cares about her parents. And I’m a citizen looking around at our irrational health care system and feeling helpless, enraged and scared."

HuffPost
(((Cindy Weinstein)))Sep 10, 2023
A favorite photo of my parents, Tzip (short for Tzipporah; she never liked her birth name, Matilda, and so always went by her #Hebrew name) and Jerry. Decades after this picture was taken, my mom would become my dad's #caregiver and she gave him all the #love she had. #WorldAlzheimer'sMonth
#EndAlz
(((Cindy Weinstein)))Sep 9, 2023

"No support was offered, no treatment plan, no signposting, no leaflets. I can’t tell you how lost and frightened I felt." #Scientists & #neurologists are working hard to understand what is happening in the #brain of someone with #Alzheimer's, #FTD, #CTE, #vasculardementia, and other forms of #dementia. But we know there are ways of helping people w/#dementia (not nearly enough, but still) & #caregivers.
It should not be like this.

https://www.yahoo.com/lifestyle/husband-alzheimer-44-symptoms-didn-160000744.html

#EndAlz
#WorldAlzheimer'sMonth

Yahooist Teil der Yahoo Markenfamilie

(((Cindy Weinstein)))Sep 7, 2023
#FindingTheRightWords turns 2 today. Here I am w/my co-author #Dr.BruceMiller, a #doctor whose #empathy, #knowledge, and #generosity knows no bounds. That my father died of #early-onset #Alzheimer's couldn't be changed, but writing the #memoir w/ Bruce changed me, helping to put that experience of profound fragmentation (my father's; mine) into something a little more whole. W/so much gratitude to Bruce and the many #neurologists working to #EndAlz always and esp. during #WorldAlzheimer'sMonth.