Some GuyIt's great to see such a huge turnout for this past weekend's No Kings Rally. However, at the end of the #weekend, a friend (who works in healthcare) asked me which rally I went to. I told him I didn't attend any due to caregiving responsibilities. He asked what was so difficult about bringing our son to a rally.
So...I want to talk about #caregiving for a bit. I've mentioned here before my son is fully #disabled with severe spastic #quadriplegic cerebral palsy, is #actuallyautistic, and has significant #sensory #needs. Caregiving is physically and emotionally #brutal. It's a significant #life change that, unfortunately, a lot of #people simple do not and cannot fathom - unless it happens to them.
The best way I can describe *my* #experience is it's real time #multivariable #calculus with known, unknown, and constantly changing variables. It requires high level non-linear systems-based thinking to solve #problems, #chaos #management, and constantly being on high alert.
#Burnout is inevitable, the #physical and #emotional #labor is genuinely exhausting on a cellular level, and #time and #access to self care is rare. It's also incredibly #socially #isolating.
In addition to the #social #isolation, navigating the outside world isn't just unnecessarily difficult it's a #failure of the #system. The uncomfortable #reality is most places are NOT #accessible, including #bathrooms. #Toileting is a basic #human #right! My son is too large and heavy for the baby changing stations in "#family #restrooms." We need to put him on a #dirty bathroom floor in order to change his #diaper. Where is the #humanity and #dignity in *that*?
I feel like a broken record explaining this to him for the past six years. It's honestly mind blowing and exhausting.
Sascha Niedrig
Fritz Bol
CBC Hamilton
The Cyber Unc
Mordu
CBC Calgary
SameGirlie
Moritz Kleine-Sendrail 🇺🇦
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