⚫ More investment in R&I and cooperation in and outside of Europe
⚫An increase in the use, sharing, and gathering of data while maintaining privacy
⚫Raising awareness for the need of better health systems

@jelenamalinina @drjameelnazir @psdparleuropeu @EPPGroup @ppdpsd
RT @evoke_incisive: What will it take to address the #UnmetMedicalNeeds of people living with a #RareDisease?

With @EUCOPE we are proud to join the #Partnering4PNH community & MEPs @istvan_ujhel…

🐦🔗: https://n.respublicae.eu/mgracacarvalho/status/1630969535384649739

Maria Graça Carvalho (@mgracacarvalho)

⚫ More investment in R&I and cooperation in and outside of Europe ⚫An increase in the use, sharing, and gathering of data while maintaining privacy ⚫Raising awareness for the need of better health systems @jelenamalinina @drjameelnazir @psdparleuropeu @EPPGroup @ppdpsd

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RT @evoke_incisive: What will it take to address the #UnmetMedicalNeeds of people living with a #RareDisease?

With @EUCOPE we are proud to join the #Partnering4PNH community & MEPs @istvan_ujhelyi @kympouropoulos @mgracacarvalho to celebrate #RareDiseaseDay2023 & discover their #PNH consensus paper

🐦🔗: https://n.respublicae.eu/mgracacarvalho/status/1630968775498399750

Maria Graça Carvalho (@mgracacarvalho)

RT @evoke_incisive: What will it take to address the #UnmetMedicalNeeds of people living with a #RareDisease? With @EUCOPE we are proud to…

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