#Fibromyalgia is a terrible thing but please... do not use it to slap me or minimize #TuberousSclerosis. They are NOT on the same level.

I'm kinda tired of my kidneys failing, intractable epilepsy, and so on being minimized by other sick people. It's not a contest but it's also reality driven.

My energy is spent keeping myself from keeling over, not giving you spoons.

Anyone here who has had, or knows someone with, renal angiomyolipomas or tuberous sclerosis? I'm not getting the answers I need from doctors so here I am, fediverse. 🙏

#KidneyDisease #TuberousSclerosis #TuberousSclerosisComplex #ChronicIllness

At the new aftercare system (A step-down program from hospitalization) had an extensive appointment with the P.doc. I was impressed with his thoroughness, how he talked TO me and not AT me, took into consideration my complicated health history, and how #TuberousSclerosis and #TAND are involved. The final decision was this was extreme grief (depressive) and #PTSD, not related to #Bipolar.

I have no issue with a dx. of BiP and never have (It's data, not a moral issue). I take issue with 1/

List of things that have been suggested to solve the tumors from broken DNA of my #TuberousSclerosis

-Peach Pit Powder/other poisons
-Blue Green Algae
-Macrobiotics
-Clean Eating Diet
-Various Vitamins/Minerals
-Silver Colloid

Suggested causes:
-I drank Diet Pepsi on occasion
-My mother did something wrong
-My father did something wrong
-I did something wrong
-Im of French descent
-The devil or demons inhabited my life/me
-I'm willing myself to be sick
-I don't want to let go of my disease

Woke up with my neck and #TMJ screaming. Just a slight misalignment in your facial bones, spine, or skull and one week of rain you get one week of a nonstop headache with these kinds of symptoms. We've had almost three. Using a car ride to toss someone in #Cataplexy around like a bag of rocks to trigger it doesn't help.

#TuberousSclerosis #Tumors #Scoliosis