Sicca, morbid dryness in the body, can make the heels of the feet very hard on favourite socks, so constant darning is in order 🧵
#Sjögren #SjD #VisibleMending #Kintsugi

⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.

#203 Oculta entre las sombras, la luz sigue ahí 🐺https://domandoallobo.blogspot.com/2016/08/203-oculta-entre-las-sombras-la-luz.html #blog

#DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers

La polineuropatia de fibras delgadas se asocia frecuentemente a la presencia de síndrome de #Sjögren y a los #anticuerpos anti citoplasma de neutrófilos #ANCA

#Neuropatías #Autoinmunes #México #MexicanAcademyOfNeurology #academy #XLIX #AcademiaMexicanaDeNeurología #AMN #Neurology #Neurología

Hablando de ataques de #ansiedad.
Me avisan de un día para otro que viene una doctora a casa y aquí estoy con mi amigo el Valium.
Eso es lo que han hecho conmigo con tanta luz de gas en consulta y valoraciones para #dependencia #discapacidad #incapacidad 🤬
#EncefalomielitisMialgica #Lupus #Fibromialgia #Sjögren #migrañas #POTS #raynaud #NdT #NauralgiaTrigeminal
Ayer fui a sacarme una muela y me sacaron dos con puntos de sutura y antibióticos los próximos días .
Estas ofertas 2x1 no me gustan.
#SaludBucodental #Sjögren

Scleral lenses can change everything for keratoconus patients.
They vault over the cornea, creating a smooth surface for clearer, stable vision—even when glasses and soft contacts fail.

Custom fit with Eaglet ESP
Every eye is unique.

#keratoconus #sclerallenses #cornea #specialtycontacts #sjogren #dryeye #ectasia

Today is World #Sjögren's Disease Day.
Heading to Dublin for an event in Royal College of Surgeons.
https://sjogrens.org/get-involved/spread-awareness/sjogrens-april-awareness-month/world-sjogrens-day
World Sjögren's Day

What is World Sjögren's Day?World Sjögren's Day is meant to put a face on the millions of people who live with this disease or suffer from symptoms and have yet to be diagnosed. It gives everyone touched by Sjögren's a vehicle to reach out and educate those close to them - family, friends, co-workers, neighbors, etc. - about the disease. It is the ideal opportunity for you to have your voice heard and to spread awareness about this life-altering disease.

Sjögren’s Foundation

It’s a strange feeling, isn't it? You wake up, or maybe it happens slowly through the day, and you catch a glimpse of yourself. #facialswelling #Mumps #parotitis #salivaryglandinfection #Sialadenitis #Sjögren’ssyndrome #swollenparotidgland

https://priya.health/parotitis/

Parotitis: Why Is My Face Swollen & What To Do?

Learn about Parotitis, the causes of a swollen parotid gland, including mumps, infections, and other conditions. Discover symptoms, diagnosis, and treatment options.

Health With Priya

“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587

"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."

#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens

Boa tarde, xentiña! Fago unha pregunta por aquí a ver se hai sorte:

Alguén de por aquí ten ou coñece alguén que teña síndrome de Sjögren? Encargáronme un proxecto de validación duns cuestionarios sobre Sjögren e preciso atopar xente que teña a síndrome para validalos. Iso si, os cuestionarios están en galego, así que necesito participantes que o falen.

Agradezo retoots! 😊

#sjögren #sjogren #sjogrens