Congratulations, Emmanuel, on this online publication showing how #sirolimus treatment can be adapted to patients' needs. Most #patients with #slow-#flow #vascular #malformations benefit to some extent, and many experience significant #symptom reduction even with #intermittent dosing. This is a big step forward in the #multimodal management of vascular malformations. #VASCERN #VASCAPA #CMTC #HEVAS #WELRI #ISSVA #EVDays #deduveinstitute #Leducq #Radiorg #Eurordis #Lymph

https://link.springer.com/article/10.1186/s13023-025-04151-y

Safety Warning for people on Rapamycin / Sirolimus / Rapamune

Chrysanthemum, Dandelion, Bishop's Weed, and/or Liquoirce, even if blended with other tea ingredients, can interact with the medications, including stopping absorption & be potentially dangerous. Please be careful.

For me personally, chrysanthemum tea blocked the efficacy of my latest dose of rapamycin. I'm really hoping that's all that it did.

https://pubmed.ncbi.nlm.nih.gov/24824478/

#LongCovid #MECFS #rapamycin #sirolimus #transplant #polybio #putrinoLab #rapamune #mTorInhibitor #lymphaticMalformation #TuberousSclerosisComplex

Is Novavax impacted by Sirolimus (5mg/2x a week)

I tried to read studies but my brain fog is real bad today and I’m struggling to parse if subunit vaccines are “live” and realized I need someone to explain it to me please.

Right now I’m holding off on my latest dose before vaccination, but I’m feeling like such garbage without it, I figured I should ask .

TIA!

#novavax #nuvaxovid #longcovid #sirolimus

Peeps with long Covid who live in and around NYC

Mount Sinai is taking applications for a long covid clinical trial using low-dose rapamycin.

#LongCovid @longcovid #rapamycin #Sirolimus #NYC #NY #NJ #CT