Man functionally cured of sickle cell disease through gene therapy, Farrah Reed reports. Find this article and more at canadahealthwatch.ca #SickleCellDisease #HealthBreakthrough
Louisiana man becomes first in region functionally cured of sickle cell disease

Daniel Cressy, 23, says path leading to completion of curative gene therapy is his โ€˜greatest blessingโ€™

The Guardian
๐Ÿฉธ Today is World Sickle Cell Day.
Let's raise awareness about Sickle Cell Disease and support efforts toward early diagnosis, improved treatment, and better patient outcomes.
Clinical research continues to drive innovation and hope for millions worldwide.
#WorldSickleCellDay #SickleCellDisease #ClinicalResearch #RareDisease #Healthcare #GenelifeClinicalResearch

๐—ช๐—ผ๐—ฟ๐—น๐—ฑ ๐—ฆ๐—ถ๐—ฐ๐—ธ๐—น๐—ฒ ๐—–๐—ฒ๐—น๐—น ๐——๐—ฎ๐˜† ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฒ โ€“ ๐Ÿญ๐Ÿต ๐—๐˜‚๐—ป๐—ฒ
๐—ง๐—ต๐—ฒ๐—บ๐—ฒ: ๐—–๐—น๐—ผ๐˜€๐—ถ๐—ป๐—ด ๐˜๐—ต๐—ฒ ๐—ฆ๐˜‚๐—ฟ๐˜ƒ๐—ถ๐˜ƒ๐—ฎ๐—น ๐—š๐—ฎ๐—ฝ: ๐—˜๐—พ๐˜‚๐—ถ๐˜๐˜† ๐—ถ๐—ป ๐—ฆ๐—ถ๐—ฐ๐—ธ๐—น๐—ฒ ๐—–๐—ฒ๐—น๐—น ๐——๐—ถ๐˜€๐—ฒ๐—ฎ๐˜€๐—ฒ

Today, on World Sickle Cell Day, we come together to raise awareness about sickle cell disease (SCD), a major genetic condition affecting over 300,000 births worldwide every year. India bears the second-largest burden, especially among tribal communities facing social and economic challenges. Early diagnosis, proper treatment, and community support are vital to improving lives.

This year's theme highlights the urgent need to close the survival gap by promoting equity in care and support for all affected individuals. Letโ€™s uniteโ€”locally and globallyโ€”to share knowledge, strengthen support systems, and ensure better health outcomes for those living with SCD.

๐—ฅ๐—ฒ๐—บ๐—ฒ๐—บ๐—ฏ๐—ฒ๐—ฟ:
- Sickle cell trait carriers should get tested, especially before planning a family
- Newborn screening within 24-48 hours is crucial for early detection
- Awareness can save lives and reduce complications

Join the movement to empower patients and communities!

#WorldSickleCellDay #SickleCellAwareness #ClosingTheGap #EquityInHealthcare #SickleCellDisease #EarlyDiagnosis #GeneticDisorders #HealthForAll #SupportSCDPatients #NewbornScreening #SCABPharmacy

Man produces sperm from testicular tissue frozen as a child in breakthrough trial

Exclusive: Sperm re-transplant offers hope that boys left infertile by chemotherapy could have biological children one day

The Guardian
India has launched BIRSA 101, the nationโ€™s first indigenous CRISPR-based gene therapy for Sickle Cell Disease, marking a major leap in genomic medicine and affordable healthcare. https://english.mathrubhumi.com/lifestyle/health/india-crispr-gene-therapy-sickle-cell-disease-n4em93uz?utm_source=dlvr.it&utm_medium=mastodon #SickleCellDisease #CRISPRIndia #Birsa101 #GenomicMedicine
Osteomyelitis in Sickle Cell Disease Flashcard โ€” Key Pathogens and Mechanisms

Learn why Salmonella and Staphylococcus aureus are major causes of osteomyelitis in sickle cell disease. High-yield topic for USMLE Step 1.

mymedschool.org

NHS alert over often symptomless 'trait' that may be serious if inherited by children

https://fed.brid.gy/r/https://www.mirror.co.uk/news/health/nhs-alert-over-often-symptomless-35996293

๐—ช๐—ผ๐—ฟ๐—น๐—ฑ ๐—ฆ๐—ถ๐—ฐ๐—ธ๐—น๐—ฒ ๐—–๐—ฒ๐—น๐—น ๐——๐—ฎ๐˜† โ€“ ๐Ÿญ๐Ÿต ๐—๐˜‚๐—ป๐—ฒ ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฑ

๐—ง๐—ต๐—ฒ๐—บ๐—ฒ: Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy

๐—ช๐—ต๐˜† ๐—œ๐˜ ๐— ๐—ฎ๐˜๐˜๐—ฒ๐—ฟ๐˜€:
Sickle cell disease (SCD) affects over 300,000 births globally every year, with a large burden in low- and middle-income countries like India. It disproportionately impacts marginalized communities, especially tribal populations who face socioeconomic challenges. Awareness and early diagnosis are crucial to reduce complications and improve quality of life.

๐—”๐—ฏ๐—ผ๐˜‚๐˜ ๐˜๐—ต๐—ฒ ๐——๐—ฎ๐˜†:
World Sickle Cell Day was established by the United Nations in 2008 to spotlight sickle cell disease as a major genetic health concern. The day promotes public education, encourages screening, and supports affected individuals and families worldwide.

๐—ž๐—ฒ๐˜† ๐—ฃ๐—ผ๐—ถ๐—ป๐˜๐˜€ ๐˜๐—ผ ๐—ฆ๐—ต๐—ฎ๐—ฟ๐—ฒ:
- Sickle cell disease is a genetic blood disorder causing abnormal red blood cells that affect oxygen delivery.
- Early diagnosis through newborn screening and blood tests is vital.
- Communities need empowerment to advocate for better healthcare access and support.
- Knowing your sickle cell trait status helps in family planning and prevention strategies.

๐—›๐—ผ๐˜„ ๐—ฌ๐—ผ๐˜‚ ๐—–๐—ฎ๐—ป ๐—›๐—ฒ๐—น๐—ฝ:
- Get tested or encourage others to get screened, especially before pregnancy.
- Support local and global awareness campaigns.
- Share accurate information about SCD symptoms, treatment, and prevention.
- Advocate for better healthcare policies and resources for affected communities.

Letโ€™s unite on 19 June 2025 to empower communities and create lasting change for people living with sickle cell disease.

#WorldSickleCellDay #SickleCellAwareness #SickleCellDisease #GlobalActionLocalImpact #EmpowerCommunities #GetTested #HealthEquity #GeneticDisorders #EarlyDiagnosis #SupportSickleCellPatients #HealthForAll #BloodDisorders #KnowYourStatus #SCABPharmacy

Africa: Sickle Cell Disease Remains a Challenge in Africa!: [The Point] Sickle cell disease refers to a group of inherited blood disorders with symptoms like anaemia and blocked blood vessels. About 80% of the world's sickle cell disease cases occur in sub-Saharan Africa. Lack of access to comprehensive healthcare in the region adds to the burden of the disease. http://newsfeed.facilit8.network/TLPdqV #SickleCellAwareness #HealthcareForAll #AfricaHealth #SickleCellDisease #HealthEquity