β#PatientEngagement is particularly important within the sphere of rare diseasesβ. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.
π https://www.eurordis.org/patient-engagement-in-medicines-development/
#RareDiseaseDay #SharingResources
#SharingIsCaring
β‘οΈ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: https://medipace.com/2023/02/24/patient-engagement/
From launching applications to next yearβs Open Academy Schools, to supporting the new, EU-funded REMEDi4ALL project on medicines repurposing, we at EURORDIS have busily continued our efforts to facilitate the engagement of people with rare diseases in the development of medicines. It may be obvious that the experiences, preferences and hopes of people living with [β¦]
DoomsdaysCW
MediPaCe
Paulio