TarValon.NetFeb 29, 2024

Today is Rare Disease Day!
Head on over to our boards to learn more and join in on the Servant of All Team's discussion

https://buff.ly/49K2LwH

#AesSedai #Fandom #Fansite #RareDiseaseDay #ServantOfAll #ShareYourColours #TarValon #TarValonNet #TheWheelOfTime #TheWhiteTower

February 29th - Rare Disease Day

Rare Disease Day Rare Disease Day was created in 2008 and is observed on February 28th, or February 29th in a leap year. This celebration is a global movement to advocate for equity in diagnosis, therapies, treatment, healthcare, and social opportunity for people living with rare diseases...

The White Tower
Petra SitteFeb 29, 2024
Im Krankenhausreformgesetz der Bundesregierung kommen derzeit seltene Erkrankungen nicht vor. Das muss geändert werden, um Zentren für seltene Erkrankungen und bestehende Forschungsverbünde nicht zu gefährden. #RareDiseaseDay #RareDisease #ShareYourColours #LightUpForRare #TagderSeltenenErkrankungen
TarValon.NetFeb 8, 2024

Rare Disease Day was created in 2008 and is is a global movement to advocate for equity in diagnosis, therapies, treatment, healthcare, and social opportunity for people living with rare diseases. Throughout this month, the Servant of All Team will be sharing stories of members in our community and others who are impacted by rare diseases. Visit https://buff.ly/495yoAZ to join the discussion

#AesSedai #RareDiseaseDay #ServantOfAll #ShareYourColours#TarValonNet #TheWheelOfTime #TheWhiteTower

February 29th - Rare Disease Day

Rare Disease Day Rare Disease Day was created in 2008 and is observed on February 28th, or February 29th in a leap year. This celebration is a global movement to advocate for equity in diagnosis, therapies, treatment, healthcare, and social opportunity for people living with rare diseases...

The White Tower
𝓥𝓲𝓬𝓽🍓𝓻𝓲𝓪Mar 1, 2023
I hereby petition to change the #RareDiseaseDay mascot from a zebra 🦓 to a unicorn. 🦄 But happy day to those of us who are rare! Keep defying odds and educating medical providers! #ShowYourStripes #ShareYourColors #ShareYourColours #SMA #ChronicIllness #Disability
Chandani DeZure, MDFeb 28, 2023
DID YOU KNOW?
🔹️25 million people suffer from PH in 🌎?
🔹️3 in 4 pts have advanced dz by the time of dx
🔹️cost of therapies $100k/yr
#phaware #RareDiseaseDay #ShowYourStripes #ShareYourColours
---
RT @PHAssociation
More than 25 million people in the U.S. and 300 million people worldwide are impacted by a rare disease. #Pulmonaryhypertension is often associated with other #rarediseases such as #scleroderma, #HHT, idiopathic #pulmonary…
https://twitter.com/PHAssociation/status/1630572366739718146
The Pulmonary Hypertension Association on Twitter

“More than 25 million people in the U.S. and 300 million people worldwide are impacted by a rare disease. #Pulmonaryhypertension is often associated with other #rarediseases such as #scleroderma, #HHT, idiopathic #pulmonaryfibrosis, #sicklecelldisease and more. #RareDiseaseDay”

Twitter