HH&SFeb 26, 2025
It's #RareDiseaseWeek, and our friends at #ProjectSleep will be one of the speakers at #WashingtonPostLive's talk tomorrow! Register to learn about rare #SleepDisorders and other #RareDiseases at https://buff.ly/4kstRia
Innovations in research and treatment for rare diseases

More than 30 million people in the United States are affected by rare diseases, many of which are life-threatening conditions without available treatments. On Thursday, Feb. 27, join Post Live on National Rare Disease Day for conversations about the latest efforts to advance medical research, the possibilities spurred by AI and the critical role of caregivers.

The Washington Post
Ian StuartFeb 24, 2025

Is anyone here attending #RareDC2025 ( #RareDiseaseWeek in Washington D.C.)?

I am unable to attend. It could be an excellent last opportunity to advocate for the protection of the #AffordableCareAct including insurance protections for pre-existing conditions. Another good ask would be to stop research funding cuts.

It is not a time for our most vulnerable folks to be silent.

#ACA #USPol #USPolitics #InvisibleDisabilities #preexisingConditions #healthInsurance #TrumpRegime #DOGE #Trump #Elon