What a great #VASCERN-VASCA meeting. Thank you Roberta, Thi-Mai et Treasure for the organisation. And all those having presented the steps made forward in the various task forces. Looking forward to the follow-up of all the action points. #vascapa #hevas #cmtc #vascern #radiorg #eurordis

https://www.facebook.com/100069557370933/videos/pcb.1250340800627821/27316982817890243

VASCERN: The ERN on rare multisystemic vascular diseases on Reels

Congratulations, Emmanuel, on this online publication showing how #sirolimus treatment can be adapted to patients' needs. Most #patients with #slow-#flow #vascular #malformations benefit to some extent, and many experience significant #symptom reduction even with #intermittent dosing. This is a big step forward in the #multimodal management of vascular malformations. #VASCERN #VASCAPA #CMTC #HEVAS #WELRI #ISSVA #EVDays #deduveinstitute #Leducq #Radiorg #Eurordis #Lymph

https://link.springer.com/article/10.1186/s13023-025-04151-y

Congratulations Peyman for the identification of associations between #variants in #spliceosomal genes and the occurrence of #cleft #lip and #palate. A #complex disease and #heterogeneous underlying pathophysiology. #Radiorg #eurordis #CLP #WELRI https://onlinelibrary.wiley.com/journal/humu/
So great 2 days at the #French Society of #Lymphology 2025 in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. The field is moving along faster than ever. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg #lymph #LM #ISSVA
What a great session at the #BRAIN 2025 in London on fast-flow vascular malformations in the brain. Intense discussions and data sharing. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg