GP Educational Webinar on #PVFS and ME/CFS

Dr Ros Vallings, a New Zealand GP who is an expert on ME/ #CFS, will present a free talk followed by a Q&A session on Tuesday, April 8 7:30 PM for just over one hour.

https://irishmecfs.org/blog/april-8-2025-educational-event-for-gps-key-messages-for-primary-care-on-the-diagnosis-and-management-of-post-viral-fatigue-syndrome-and-mecfs

#MyalgicE #PostViralSyndrome #MedEd #CFSME #MEcfs @mecfs

April 8, 2025: Educational event for GPs: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS"

Irish ME/CFS Association - for Information, Support & Research
What are fatigue and Post-Exertional Malaise (PEM)? – Long COVID Justice

A big thank you to everyone who did anything, big or small, for the #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome cause in 2023 (including simply sharing messages on social media).

Together we can make a difference.

#CFS #MEcfs #MyalgicE #PostViralSyndrome #PwME #MEeps @mecfs

@jhaworth @msquebanh

Let me know if you need help finding some supplements to try.

My son has #LongCovid and I’m mostly recovered from a #PostViralSyndrome syndrome ~8 years ago.

Happy to make suggestions.

New pre-print from Taiwan:

How post-infection status could lead to the increasing risks of #chronicfatiguesyndrome & the potential mechanisms: A 17-year population-based Cohort study

Free:
https://assets.researchsquare.com/files/rs-3289981/v1/55890598-6f0d-4f73-a9f4-5349e07baac0.pdf?c=1693414746

"The findings of this study demonstrate the association between CFS and infection with common pathogens, including bacteria, virus and fungi"

@mecfs

#MyalgicEncephalomyelitis #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness #MEcfs #CFS #PwME #MyalgicE

This isn’t just about #LongCovid, though.

We now have evidence that #MultipleSclerosis is a #PostViralSyndrome related to the Epstein-Barr virus.

Shingles is a PVS of varicella, chicken pox, which is why kids should get vaccinated vs be exposed to the disease.

Similarly with HPV and a half dozen kinds of cancer.

There’s a strong suggestion that #CFSME is a PVS.

But we don’t yet know.

We need to learn. So many are suffering from these conditions. We need to do more.

So I do what I can.

I’ve been mentioning that I’d announce something.

Something connected to #PostViralSyndrome research.

Something kinda big.

#Canada’s pretty big.

Next year, I’ll be raising funds for research into PVSs by walking across Canada.

43 years ago, #TerryFox attempted to cross Canada to raise funds for cancer research. Nowadays, we know much about cancer. More survive it, including me.

PVSs are debilitating and as mysterious as cancer was in 1980.

Time to think big.

#LongWalkForLongCovid

@evdas

it’s moments like this where i want to double down on helping #PostViralSyndrome research.

not for the sake of folks foolish enough to not protect themselves from a preventable disease. for the sake of everyone else.

May 5 press release:
"NIH study identifies features of #LongCOVID neurological symptoms: Findings offer insight into biological mechanisms, pointing to possible treatments"

https://www.nih.gov/news-events/news-releases/nih-study-identifies-features-long-covid-neurological-symptoms

This in-depth study was run by Avi Nath who also is leading the in-depth NIH ME/CFS study using a similar format

@longcovid #longhaulers #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness

NIH study identifies features of Long COVID neurological symptoms

Findings offer insight into biological mechanisms, pointing to possible treatments.

National Institutes of Health (NIH)

I have just donated to David Tuller.

I only get to read some of what he writes these days but it’s reassuring to know he's keeping a close eye on the output from those from the biopsychosocial viewpoint who have caused so many problems over the years

Donate link: https://bit.ly/40kHhkY

@mecfs @cfs @longcovid #MyalgicEncephalomyelitis #myalgice #pwme #PwMEs #pwmecfs #pwlc #LongCovid #PostCovid #PostCovid19 #cfs #cfsme #CFIDS #PostViralIllness #PostViralSyndrome