Meeting Olga reminded me why I tell these stories. Her strength isn’t loud, it’s lived. From courtroom to hospital room, she’s proof that purpose doesn’t end when life changes.
#LupusWarrior #BrainInjurySurvivor #PatientAdvocate #Resilience #ChronicIllness #Advocacy #HealthJustice #NarrativeMedicine
If you’re on California coverage with Anthem Blue Cross of California / Elevance Health:
Don’t assume every rep you talk to is licensed to give true coverage guidance or qualified to decide your appeal.
Ask: • Are you licensed or a CS rep?
• Who made this appeal decision & what are their qualifications?
• Can you send this explanation in writing?
Your health deserves more than a script. Question everything.
#Anthem #Elevance #KnowYourRights #PatientAdvocate #HealthCoverage
I just saw a news item about this on the #MEAction website.
"#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024"
https://www.meaction.net/2024/05/02/meactions-jaime-seltzer-selected-for-time100-health-2024/
Looks like it's pretty much the same as what they sent out via email so this is mostly for those who are not on their mailing list.
Reminder: This group relies on volunteers and donations so please donate if you can ❤️
https://www.meaction.net/donate
5/n
#MEcfs #PwME #MyalgicEncephalomyelitis #Time100 #Time100Health #PatientAdvocate #Advocacy
We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME. We intimately know the … #MEAction’s Jaime Seltzer Selected for TIME100 Health 2024 Read More »
Here's a short TikTok from Jaime (just under 3 minutes):
https://www.tiktok.com/@meactnet/video/7364420301448301870
4/n
#MEcfs #PwME #MEAction #MyalgicEncephalomyelitis #PatientAdvocate #Advocacy
And here's a link to the Time 100 website with her profile:
"Jaime Seltzer,
Postviral patient advocate"
https://time.com/6967257/jaime-seltzer/
3/n
#MEcfs #PwME #MEAction #MyalgicEncephalomyelitis #PatientAdvocate #Advocacy
"Advocate for yourself if you're well-versed in the industry. If you don't, find an advocate like myself." #PatientAdvocate #InsuranceHelp
Read more 👉 https://lttr.ai/APh7F
So I was on the phone with some sort of patient advocate. We talked about my hypercholesterolemia, then we move on to my cancer.
Her: "You've had a gastric lymphoma. What's the medicine you take for it?"
My: "My lymphoma was not gastric."
Her: "Sir, we talked about your heart problem. We're talking about your cancer."
My: "Yes, I kn..."
Her: "Sir, first, I asked you about your heart problem. We're done with it. Now I'm asking you about your cancer."
Me: "Yes, I know this."
Her: [talking over me.] "Sir..."
Rinse and fucking repeat. We spent a good five minutes with her explaining to me, as if I were a damn baby, I might add, what I fucking already knew!!!
When finally, she asked me again for the medicine. I told her, "your diagnosis is wrong: my lymphoma was not gastric."
Her: "Oh...."
#ActuallyAutistic #PatientAdvocate #hypercholesterolemia #cancer
Oh, so I emailed them, and they said they don't see new patients until 10:00am and the best time to call is between 10:00am and 1pm.
Never mind that the phone tree does not inform us of this. I guess we have to use our ESP and read their bloody minds.
I'm currently on hold, so that's progress.
Rick Ollie
M3Imagination
ahimsa
Saskia Wolf 💙
Your Keynote Speaker
Your Autistic Life FR/EN/ES