Dominic TyerWes Streeting says patients should view data sharing ‘the same as taxes’
Open Data InstituteThe Data Use and Access Bill was introduced to Parliament last night. We welcome the conditions set out in the Bill to support the future of open banking and the growth of new smart data schemes and look forward to seeing how measures to strengthen the NHS’ digital and data infrastructure are enacted in the public’s best interests. Read our initial thoughts https://bit.ly/4fgNCFR #DataInfrastructure #NHSData #Data
Richard DallawayRecommendations from the Tony Blair Institute:
"The DHR [digital health record] should be a non-proprietary resource conferred on citizens by the Department of Health & Social Care [...] As previous attempts to enforce interoperability through contracts with providers has failed, government should pass legislation [...] compelling all EHRs to have open APIs with health information supplied in a standardised, readable format."
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Hadley BeemanWhere does my NHS patient data go?
This work is amazing. Read @jessRmorley’s thread (or the linked Lancet paper) for a breakdown of the issues.
And check out this image — I’ve searched my whole career for something this comprehensive and yet simple.
#privacy #NHSdata #secondaryUses
Jess Morley on X
⏰NEW PAPER⏰ WHERE DOES NHS DATA GO?? This is a BIG one. When @bengoldacre and I wrote the Goldacre Review last year, we recommended that all NHS data flows be mapped. Now Dr. Joe Zhang & I (with some help) have done just that: https://t.co/SfF4ihX9wZ Some key takeaways 🧵
Zoë TurnerTo those that think that data and its analysis is objective and cannot cause direct harm:
"Another section that did not make the final version highlighted a "culture of fear" among some staff, who reported anxiety around how the data was used."
Norfolk and Suffolk NHS trust deaths report 'watered down to spare bosses' - BBC News
https://www.bbc.com/news/uk-england-norfolk-66086388
Just Ice"NHS trusts are sharing intimate details about patients’ medical conditions, appointments and treatments with Facebook without consent and despite promising never to do so...
An Observer investigation has uncovered a covert tracking tool in the websites of 20 NHS trusts which has for years collected browsing information and shared it with the tech giant in a major breach of privacy..."
Jim Donegan 🎵 ✅#NHS #Data #Breach: trusts shared patient details with #Facebook without #Consent
#TheGuardian #Newspaper #GuardianNewspaper #TheGuardianNewspaper #NHSData #DataBreach #PatientData #PatientRecords #PatientInformation
BinkiemmaNHS patients are more likely to die - it is right to ask why: #NHS #nhsdata #nhscrisis
NHS patients are more likely to die – it is right to ask why
Last week a think-tank report drew newspaper headlines with the claim that the NHS ranked second from bottom across "a series of major health outcomes" compared with other international systems. Does the NHS really perform so badly internationally, and is there a real problem with our health outcomes? Mark Dayan looks at the evidence in the round.
Neil MullensMore Russian Linked Lobbying in UK Parliament
Further investigations by Iain Campbell reveal key #Russian businessmen tied to parliamentary groups involved in #tech and #healthcare data
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