Turns out that getting waxed during a fibro flare is not the best experience.

It feels like the muscles that are being waxed are all deeply bruised...

#NESVoid

We've half joked here at home, that if I were to ever have a medical emergency, or a dire medical issue, I'd never know bc of my many already chronic symptoms.

I'm petrified that I'm facing down the barrel of that gun rn...

#NESVoid

I feel like I am made out of paper a lot of times. Crumpling and tearing away from the smallest of nudges; all the while, giving myself papercuts in the process of existing...

#NESVoid

God, I'm such a nap-o baby...

#NESVoid

#Clinician's Roundtable with Tania Dempsey, MD on March 14th

Dr. Dempsey will give a 45-minute lecture on #vector-borne illnesses often seen as co-infections in #MECFS and #LongCovid, followed by a 15-minute Q&A .

Register now at https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration

#iacc #chronic #illness #infectious #MD #clinician #medX #patientled #millionsmissing #nesvoid #pwME

Welcome! You are invited to join a webinar: Clinician's Roundtable with Tania Dempsey, MD. After registering, you will receive a confirmation email about joining the webinar.

Dr. Dempsey's will give a 45-minute lecture on vector-borne illnesses often seen as co-infections in ME/CFS & Long Covid, followed by a 15-minute Q&A . Dr. Dempsey is the founder of the AIM Center for Personalized Medicine - Internal and Integrative Medicine. She is a world renowned expert in chronic disease, autoimmune disorders, and mast cell activation syndrome, and is sought after internationally for her knowledge of chronic immune dysregulation. Dr. Dempsey’s extensive knowledge and experience in Mast Cell Activation Syndrome, mold, and Lyme Disease, has propelled her to the forefront of the functional medical community as a recognized and trusted speaker, researcher, advocate, and physician. "Never let anyone, especially a medical professional, tell you that your symptoms are not real or they don’t fit a specific disease. You know your body better than anyone else, so listen to it and keep searching for answers if you haven’t found them yet. And remember that you only get one body, so treat it well." - Tania Dempsey, MD. Dr. Dempsey's podcast: Mast Cell Matters https://drtaniadempsey.com/podcast/ Dr. Dempsey appearances: https://drtaniadempsey.com/press-media/ Dr. Dempsey: main website https://drtaniadempsey.com

Zoom

Trying to take it easier today. Hopefully an ending to a bad fibro week. I have 3 more rehearsals, and 6 shows between now and next Sunday.

I can't afford to be broken on show days...

It's worth the time and work, but holy fuck...

#NESVoid

Time for more medical appts. They never stop lololol 😅

#NESVoid

Fibro is kicking my ass extra today
:(

#NESVoid

@likelyjanlukas I know someone who can do the design for it and everything! And I was part of my journalism club in school so, this would be totally doable, and important for representation.

#NESVoid

I hate how some disabilities either "don't exist" or are dismissed (usually in grandeur/severity)

People tend to not do that with something external to "prove" we are sick or disabled

Most folk don't think that small things, such as glasses,.fall under that umbrella too. I know I didn't for long time despite wearing them myself

People also like to insinuate that "we make our disability our whole personality

Maybe because it affects our whole life?

Anyways, vent over 😞

#NESVoid