Mastodawn

Friends and neighbours, I am not at all well today 🫩 #ChronicIllness #NEISvoid

Since I am a tired dumbass and it doesn’t seem to be my day with the braincell,

here is a second post to tell y’all that you should subscribe to Open Sorcery if you enjoy what we have to say since I didn’t add it in the last post and I STILL can’t figure out how to edit the site so that it’ll let me edit posts directly from WordPress after I’ve posted them without completely breaking everything again.

So, if you’ve been creeping for awhile and you enjoy this website, please subscribe. Huzzah!

✓ Subscribed

We’ve also been thoroughly WebFingered, so if the Fediverse is more your speed, follow us wherever the hell makes your little heart palpitate. 💛

Now, I’m going to hopefully stop procrastinating and haul my extremely fatigued body into the fucking wet box now that it’s almost 2 AM. It’s shower time.

Goodnight, all.

-Allēna

#fatigue #Fediverse #GoodnightCruelWorld #IFuckedUp #NEISvoid

WordPress.com

Show thread

Tom Kindlon 6d ago

Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty

#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

clown event still possib-L Apr 10

It is drugs day, the day where my immune system is at its strongest and most aggressive, and I went to a museum yesterday.

I feel like GARBAGE. My throat hurts, my back hurts, I'm fairly certain someone has filled my blanket with lead weights, my eyes are drier than the Sahara.

I've been awake for maybe ten minutes. I have to get up to do my injection to make everything better, but that's two rooms away, which is unfathomably far.

#NEISvoid #ChronicIllness #autoimmune

Z Apr 9

Ziggy the happy snugglebug #kitty #cat says hi and she loves you and hopes you're doing well!! 💕
(Tbh I'm not doing well with my #chronicpain and #chronicillness, and she's taking good care of me.

) #neisvoid #spoonie

Maaike Apr 9

While technically not mutually exclusive, i feel like some people identify much more with the label "disabled", and others with "chronically ill" What about you, fellow #LongCovid gang? If you have to pick one, are you disabled or chronically ill, or something else? #NEISVoid

Tom Kindlon Apr 4

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Show thread

bebatjof 🇵🇸Mar 31

Another rant.
We talked about how stress also causes gut issues, about breathing exercises and vagus nerve stuff. It totally bothers me that people don't seem to understand that my stress levels aren't going to improve any time soon. If I just mention that I'm ill and that it's depressing she just circles back to "you should do breathing exercises". Yes ma'am I've been doing those for about 5 years. Yes daily. Several times per day actually. So she goes "okay you're working on it, it's improving?"

No. "Working on it" and "improving" are two completely different things.

For someone who works with chronically ill people I expect you to know that.

#neisvoid #LongCovid #sibo

lez-anya Mar 25

Previously safe foods are, tinight, being proven otherwise.

Exhausted, feel like trash.

Can anxietyy/stress/etc make MCAS reactions worse?

#MCAS #NEISvoid

Stray Fish/ 野良魚 Mar 24

#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ?