(Florida, USA)
A research study that has been trying to reach its recruitment target for a long time.
Requires 2 in-person visits.
https://clinicaltrials.gov/study/NCT06211062
https://redcap.nova.edu/redcap/surveys/?s=9NP434FLJXAFLY8Y
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #ME #MyalgicE
@mecfs
6/
“Memorial narratives offer unique insight into lived experiences not captured in clinical records or epidemiological statistics, a gap that is particularly significant for a condition that has historically been poorly understood.”
#MyalgicEncephalomyelitis #MyalgicE #PwME
#mecfs
@mecfs
New article from View from the Trenches of #MyalgicEncephalomyelitis looks at upcoming events that will discuss research into ME symptoms and similar chronic diseases.
https://open.substack.com/pub/colleensteckelmeiccinfo/p/upcoming-conferences
4/
“On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””
@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing
A tragic cautionary tale that was posted on my Facebook page. 😢
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
Open Medicine Foundation: A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count
https://www.omf.ngo/introducing-ctn-lite/
https://docs.google.com/forms/d/e/1FAIpQLSeTmvjcIAM9xWEIvJXuBx_L99wmBHqwYuJ2xOwjQOtGkZl8Zw/viewform
Screenshot from latest Science for ME weekly update
#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Helper-Website for Germans
RE: https://mastodon.ie/@IrishMECFSAssociation/116431267742450459
Hope to see a few of you at this 👋.
#MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid @fedigroups.social
2/
State of Illinois declares May 12, 2026 as ME Awareness Day.
Tom Kindlon
ColleenSteckel
Björn