My migraines triggered by not getting the exactly right amount of sleep seem to develop on the opposite side of my head as migraines triggered by other stuff.
Does this happen to anyone else? And do you also get a little grumpy at not feeling pain in the usual places because that’s not how these things are supposed to go? 😂🤦🏻♀️
#Migraine #MigraineChat #ChronicIllness #MigraineHumor #Disability
question: does anyone know if any neurologists or headache experts would be interested in my notes and observations surrounding my migraines? like in an scientific/academic sense?
one of my scientist friends who i shared them with said i should consider reaching out to somebody since theyre so in-depth and ive been documenting my migraines for years. but idk how to do that or if there would actually be any interest lol
boosts appreciated! 🙏
#askFedi #askFediverse #askMastodon #neurology #MigraineChat #migraine #migraines #chronicMigraine #chronicMigraines #chronicPain #chronicIllness
Last March I had more migraines than usual because the weather was changing and seasonal allergies are one of my triggers.
This year I started allergy medications earlier and used them regularly as soon as the weather started warming up.
So far I have not noticed any upswing in migraines this March. I had a few prodrome symptoms this week, but they never escalated like they typically would.
Fingers crossed it remains this way!
I wish there were more stories about characters who have #Migraines.
I think Marilla from #AnneOfGreenGables probably had migraines based the descriptions of her terrible “headaches” that sent her to her room for long periods of time.
What other books, films, songs, etc. can you recommend about characters who have a #Migraine or who you suspect did have them?
Today I’m feeling grateful for my #Migraine meds and wondering how soon the #Postdrome symptoms will fully fade away. My neck and shoulder are still pretty stiff and sore. Thank goodness for heating pads, eh?
@jahleesu
Emgality has been similar for me.
My migraine has been permanent since mid-2017. I had to stop Botox in 2019 as my CRPS started sensitising the injection sites, and with only oral meds things were bad for a while.
Finally Emgality went on the Australian Pharmaceutical Benefit Scheme so I could afford it. It has brought my baseline migraine down a few levels, and made flares less likely and not as extreme or long-lasting. But it is not the magic solution for me!
A statistic of my #migraine last year.
194 in total. Cool cool cool.
In March I started Aimovig. You can see a wonderful placebo effect there, that unfortunately didn't last long 😬😜 (but it made the migraines less severe. Before I was like a 6 to 7 daily, now they're like 3 to 5, so that's a win still 👍)
I'm gonna try to get botox in 2023, because I've tried everything else that's avaliable in Germany, a lot of the meds even twice or thrive in the last 20 years.
The other day I tried a style of KN95 mask that has two tight bands that loop around the back of your head.
I started feeling an awful headache developing within minutes. It started in the same spot my migraines do, too.
Has anyone else in the #MigraineChat community noticed that their head hates certain types of masks?
(To clarify, I am still wearing a mask every time I go out. I just cannot wear that particular style of mask).
Lydia Schoch
snake
Lisa McLennan (she/her/ne/nem)
Jahleesu
Lydia Schoch