So I go to the doctor with documentation and data (self-administered NASA Lean Test, showing textbook POTS), and also same data when tested during the appointment, yet got sent away with nothing.

The doctor said he acknowledged that the physiology and symptoms matched, and that I'm clearly being affected by it daily, but he wouldn't refer me anywhere, because "there's no point, since there's no treatment within the Danish system", which is a straight up lie.

So no referral to tilt table test, no cardiology, no neurology. Nothing... This is the 2nd time I've tried raising this issue - which at this point is causing me to have to lay down for hours a day, to recover - and both times I've been rejected (and both times by a man).

I'm at a loss at this point. I can keep doctor hopping, to try and find someone who will actually help me, but every time I switch, it counts against me.

#POTS #PosturalOrthostaticTachycardiaSyndrome #MedicalGaslighting #MedicalAbuse

Posting this in english, because the video is in english.

The video is about pychologisation of ME/CFS and "Medically Unexplained Symptoms" in the context of PAIS, the mentality behind it and the systemic, psychological and medical violence that it entails.

https://www.youtube.com/watch?v=7jENpyRnYbE

#Anthroposophie #Anthroposophics #AnthroposophicMedicine #Gaslighting #MECFS #MedicalAbuse #MedicalGaslighting #Psychosomatik #Psychosomatics #Religion

The Violence of Psychologisation of Postviral Illnes - Matthies-Boon, Fritz, Hannibal and Nicolas

YouTube
Post 6
The incompetence is staggering. Doctors and nurses here have almost no idea how medicine actually works. Even basic dignity is a battlefield. I spent an hour yesterday arguing for a real glass for my coffee instead of cheap, thin plastic. This morning, they refused again: "No glass for you." #MedicalAbuse #Dysfunction

Today is a bad day.

I went in to get med refills, but I couldn't afford them because the fucking free doctor prescribed them wrong. So I haven't had my meds for a week. Went to get the correct ones today, and they were $40.

Awesome. So I had to do a walk in I didn't mean to do. Got the meds prescribed for the third fucking time, and I was so stressed out I left without ever picking them up.

Went back to pick up my meds, was going to celebrate with a vape. Vape mod is missing. I look for it everywhere. It's gone. I lost it somewhere in all the stress of trying to save $40.

This is the poverty tax. To save $40, I lost $80. It is the snake that eats itself.

Also I have a second job interview next week. Unfortunately I also have agoraphobia, and my vape was my safety signal.

I'm freaking out and I need to replace it now. I will do anything to replace it. But to prevent myself from engaging in desperate, self-destructive acts, I'm going to have to require myself to do nothing.

I'm so fucked. I was getting $100 from a friend soon and none of it matters because I can never get ahead and begging for scraps kills my fucking soul.

So I'm begging. Because a soul can't live without a body, and I've been a body without a soul long enough.

No GFM. This is an emergency. If I have to wait, I might as well go inpatient and fuck both job interviews.

https://cash.app/$CeruleanArc
https://venmo.com/joanburgos

P.S. Oh and next week I'll need new Adderall. So this is all hell. I get $20, it's gone. Beg for more. If you have anything, please spare me more hell. I am so close, but I'm so tired too. I can't take much more of this. At this point I feel like I'd lose less self esteem finding people to fuck me for money on Craigslist.

#MutualAid #TransJoy #PovertyTax #Agoraphobia #MedicalAbuse #Disability #EmergencyAid #Venmo #CashApp #ButlerPA #Pittsburgh #LPC #SupportArtists #MutualAidRequest

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What they said isn't even that wrong. Of course I also want to hear from caretakers, of course the psychiatric ward is not a ponycamp. But jesus fucking christ I'm talking about ABUSE not about a misunderstanding.

I didn't have examples, maybe that would have helped. Like the caretaking nurse said to her: "you must be the shame of the family" while she was in an isolation cell. Do you really want to hear the side of the nurse for this? Is this a complicated matter?

The fact that my family can't imagine how bad it is, that they think it's probably a nuanced story... what do I even do with this.

#psychiatry #ableism #MedicalAbuse #PatientsRights

🧡 (continuing)

I'm telling all this to my family. What did they say:

  • brother: I wonder what those caretakers have to say about this story, like what's their side.
  • mother: It must be very complicated to take care of someone in a psychosis.

Sooooooo: "both sides" and "it's complicated".

#psychiatry #ableism #MedicalAbuse #PatientsRights

🧡 (continuing)

The media reporting on her death: "the stigma was so big", "her mental health issues were playing up"... referencing to the abuse and her courtcase only minimally. I was so pissed about this. She literally stated in her video's that she doesn't care about taboos, that she wrote books about this topic because she wants to talk about awareness and improvements. Her life's work wasn't about stigma and mental health, it was about medical abuse.

#BrendaFroyen #psychiatry #ableism #MedicalAbuse #PatientsRights

🧡 (continuing)

So I told them about what happened with Brenda Froyen:

Brenda Froyen was a Belgian activist for patients' rights, specifically in psychiatry. In 2012, she had a psychosis and wrote a book about it to raise awareness, and then wrote a second book in 2016 about her criticism on the psychiatry sector. For me she was thΓ© locally famous activist, she was the one who got asked to talk on tv when some debate was happening etc.

Last year, she relapsed and got hospitalised again. Nothing had changed, and she was retraumatised. She posted a video on social media about her experiences in the isolation cell, and she got sued by the hospital for defamation. So she sued them for medical abuse. Summer 2024 she had a crowdfunding for the legal costs and she was posting calls for first-hand stories of abuse in psychiatric wards.

She died by suicide a month ago.

#BrendaFroyen #psychiatry #ableism #MedicalAbuse #PatientsRights

Women say they were failed by sexual abuse investigation of Oregon doctor

Dozens of ex-patients of David Farley say police and state failures meant he was not indicted despite years of abuse

The Guardian

πŸ₯€

https://open.substack.com/pub/thereforme/p/a-personal-history-of-me-by-jenny

"Food was denied if I didn’t walk to the dining room for a meal. This feat was often beyond me and I recall some of the nurses simply stepping over me after I fell to the floor." Thanks

@JennyWi04810918

for sharing your story. #ThereForME #MedicalAbuse

@KarenLHargrave
@GoreLloyd
@JulesAHouston

A personal history of ME by Jenny Wilson

Part 1: Finding my community

#ThereForME