Looks like they're never going to actually let my spouse see a Dr, just nurse practitioners. We thusly won't get anything better at this shitty & rather distant medical specialist center than we would have had the primary care clinic made the time, because we cant use phones & are being punished by the ableists running this place with this barring of said decency of care..

* This nurse practitioner didn't show up until an hour after the scheduled visit & then proceeded to spend 1/2 the visit first confusing us for the patient who was scheduled for when we were seen & apologizing/excusing her inability to keep her listed patients straight, and another 1/4 on why she couldn't & wouldn't answer the basic question, which should be in the darn file of "what's the disease process being treated by this clinic of my spouse's "....

#MedicalAbleism

Can we just burn this shitty system down already???

Somehow it's considered "normal" in the only place within a 60 mile radius with specialists treating my spouse's anemia type, for the staff to change the appointment dates & times for patients, without their knowledge & then blame the patient for the problem of them coming at the time they (the patient) actually was scheduled for... and I'm really at a loss on wtf to do about this mess, because so far it's largely had him getting denied actual access to treatment from a MD & instead so far pushed onto nurses that somehow refuse to understand or accept that inability to use a phone isn't a valid reason to deny real care, nor one to have them repeatedly show up to visit an absent physician.

So far we ceded to basic ID theft in terms of joining the patient portal, but beyond that????

This has been a problem for years & is only getting worse from all I've encountered.

#MedicalAbleism

One woman's fight to remove barriers for aspiring doctors with disabilities

https://www.npr.org/2025/05/15/nx-s1-5272736/doctor-disability-medical-field

#Ableism #MedicalAbleism #Accessibility #HigherEd #Medicine @disability @academicchatter

"Healthcare Disparities for Patients With Disabilities Start in Medical School"

https://www.medscape.com/viewarticle/healthcare-disparities-patients-disabilities-start-medical-2025a10004ge?form=fpf

The study "“The Forgotten Minority”: Perpetuation of Ableism in Medical Education" : https://link.springer.com/article/10.1007/s11606-024-09308-2

#Ableism #MedicalAbleism #Healthcare #UCAccessNow @disability @academicchatter

Audrey Boochever wrote this guide for grad students at UC Davis.

"Navigating Chronic Health Challenges & Autoimmune and
Mysterious Illnesses While in Graduate School:

A Resource Guide"

https://drive.google.com/file/d/1RZ2yipL0p5nCtfuwCMU770jnJ1dyLIOi/view #MedicalAbleism #NeoliberalHellhole #UCAccessNow

Medical school training and culture that does not give you time to recover and recharge is ableist.

Medical school culture that stigmatizes & discriminates against those who admit depression is ableist.

And so the cycle goes on - disabled people are sent to doctors to "prove" we're disabled yet doctors are trained in an ableist environment and those that acknowledge that are hounded out or simply exhausted out of it, ensuring those who benefit from ableism or at least will suffer & uphold it are those that remain. #UCAccessNow #Ableism #MedicalAbleism #Depression

October 15-16, 2024
Workshop on Health and Disability among Working-Age Adults: Trends, Disparities, and Implications for Employment and Federal Programs

https://www.nia.nih.gov/research/dbsr/workshops/workshop-health-and-disability-among-working-age-adults-trends-disparities #Disability #Ableism #MedicalAbleism #Work

ADA is the bare minimum accessibility required by law. It's supposed to be the starting line, not the finish line it's often treated as.

When questioned about UC's lack of action on the Demandifesto Action Steps, President Michael Drake acted as if being a doctor makes it impossible for one to act in ableist ways.

Our experience at Student Health and UC Davis Health says otherwise.

Johns Hopkins was taken to court for the same reason - being in medicine doesn't mean you're not ableist, not breaking the law.

https://www.thebaltimorebanner.com/community/public-health/ada-johns-hopkins-pandemic-NSNNPJVJ3FE2BG7EZ35YFQK23U/

https://web.archive.org/web/20240913022933/https://www.thebaltimorebanner.com/community/public-health/ada-johns-hopkins-pandemic-NSNNPJVJ3FE2BG7EZ35YFQK23U/ #UCAccessNow #Ableism #MedicalAbleism #COVID