MediPaCeApr 10, 2025

In 2024, we:

🌍 Reached thousands globally with patient-centric research
🔬 Led innovation in remote sampling for decentralized trials
🤝 Joined the Shared Commitment to Public Involvement
🏆 Won awards for Top Patient Experience & Medical Device Design

Our annual report is out—let’s innovate together !https://medipace.com/celebrating-success-medipaces-impact-in-patient-focussed-healthcare/

#MediPaCe #PatientEngagement #PatientInvolvement #PatientCentricHealthcare #PatientResearch #HealthcareInnovation #Collaboration

MediPaCeFeb 27, 2023

“#PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.

🔗 https://www.eurordis.org/patient-engagement-in-medicines-development/

#RareDiseaseDay #SharingResources
#SharingIsCaring

➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: https://medipace.com/2023/02/24/patient-engagement/

#RareDiseaseDay #PatientInvolvement #MediPaCe

Involving those who matter most: Improving patient engagement in the development of medicines - EURORDIS

From launching applications to next year’s Open Academy Schools, to supporting the new, EU-funded REMEDi4ALL project on medicines repurposing, we at EURORDIS have busily continued our efforts to facilitate the engagement of people with rare diseases in the development of medicines. It may be obvious that the experiences, preferences and hopes of people living with […]

EURORDIS
MediPaCeFeb 27, 2023

With #HealthEquity, #Diversity and #Inclusion being top of agenda in healthcare discussions, #Equity for people living with #RareDisease is #EquitableAccess to diagnosis, treatment, health, social care and opportunity.
#DidYouKnow?

#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

MediPaCeFeb 26, 2023

#DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?

Support #RareDiseaseDay and join the discussion to raise awareness!

#PatientEngagement #PatientInvolvement #MediPaCe

MediPaCeFeb 24, 2023

Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯

Support #RareDiseaseDay and join the discussion to raise awareness!

#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Show threadMediPaCeFeb 23, 2023

Are you interested in reading more about the #experiences of people living with #RareConditions?

Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Living with a rare disease - EURORDIS

Most rare diseases have no cure, so living with a rare disease is an ongoing learning experience for patients and families. Here is a collection of stories and videos from people who have generously shared their experiences of living with a rare disease. Would you like to share you own experience? Contact us for more information

EURORDIS
MediPaCeFeb 23, 2023

Why Advocacy Matters: Chris’ story

A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.

What’s your experience as a family member of someone living with a rare condition?

https://mdgroup.com/blog/why-patient-advocacy-matters-chriss-story/

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Why Patient Advocacy Matters: Chris’s Story - mdgroup

Chris Ojeda is a full-time caregiver for his son Billy, who has a rare terminal disease. Chris actively participates in online groups set up to support

mdgroup
MediPaCeFeb 22, 2023

Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.

➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!

https://medipace.com/2023/02/22/rare-disease-day-2023/

#RareDisease #PatientInvolvement #MediPaCe

Rare Disease Day 2023 – medipace.com