From Germany 🇩🇪
Novel activity and participation scales for children, adolescents, and young adults with postacute infection and vaccination syndromes and/or ME/CFS
https://link.springer.com/article/10.1007/s00431-026-07125-9
Screenshot from Science for ME weekly update
I like many other people thought this blog post was very good
"Why I Can’t Just Meet You for Dinner"
https://substack.com/home/post/p-178293036
Screenshot from AMMES May 2026 Newsletter
#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #PEM #PostExertionalMalaise
#PwME #ME #MyalgicE
@mecfs
Been working from bed the last couple of days, because MECFS, but Edna and Puck, gifts from the lovely @Caiotekit, have been keeping me company 😊
Had a hard fail at the ME/CFS pacing today and had my legs turn themselves off in the GP waiting room as I was leaving, causing me to fall and smash my right side and face into the floor.
No bruising yet, but my face is a bit swollen. Going to make sure to rest for the rest of today and a good chunk of tomorrow.
One benefit of chronic pain is it doesn't hurt any more than a usual day, and I didn't break my phone or specs.
Deutsche Gesellschaft für ME/CFS:
🎥 TRU DOKU: ME/CFS - Ich will meine Schwester zurück
Die Reportagereihe TRU DOKU hat eine Kurzdokumentation zu #MECFS veröffentlicht. Johanna berichtet über ihre Schwester Mia, die 2022 nach einer Corona-Infektion schwer an ME/CFS erkrankt ist und wieder nach Hause ziehen musste, wo sie durch ihre Mutter und Familie gepflegt und unterstützt wird. Neben Mia selbst kommen auch ihre Mutter und Mias Freund Giovanni zu Wort.
Dauer: 16 Minuten
👇
https://www.zdf.de/play/reportagen/tru-doku-106/tru-doku-134
"Ich will meine Schwester zurück"
Die ME/CFS-Erkrankung ihrer Schwester verändert Johannas Leben für immer. Statt Studium in der Großstadt bleibt sie in der Heimat, um wenigstens kleine gemeinsame Momente mit Mia zu genießen.
https://www.zdf.de/play/reportagen/tru-doku-106/tru-doku-134
Researchers including Dr Bo Bertilson, funded by ME Research UK alongside the OMF and the Amar Foundation, have identified that protein signatures in cerebrospinal fluid differ between groups of people with ME/CFS.
Read more about the study here: https://bit.ly/4vxGNYS
ME Research UK – e-newsletter May 2026
https://www.meresearch.org.uk/me-research-uk-e-newsletter-may-2026/
Tom Kindlon
Cazimodo Creative
vulgalour - Free Range Queer
dgspsoa
berndor
Ö. Ges. für ME/CFS
Guardian ᵒᶠ ᵗʰᵉ Hängematte