„Viele Ärzt*innen kennen die Krankheit nicht, sie behandeln sie falsch, man wird psychologisiert.“ Nach dem #longcovidawarenessday haben wir mit Helmut Frahs gesprochen, der seit 4 Jahren seine an #MECFS erkrankte Tochter pflegt, die mit jetzt 14 Jahren, täglich 24 h im Bett bleiben muss. Ausgelöst wurde die Krankheit durch eine #Covid Infektion. Frahs nahm sich in den letzten vier Jahren einen Tag frei. #longcovid https://rdl.de/beitrag/von-menschen-denen-man-eigentlich-vertraut-wird-man-ausgelacht
"Von Menschen, denen man eigentlich vertraut, wird man ausgelacht"

Im Nachgang des Long Covid Awareness Day, der am 15.3.2026 stattfand, sprechen wir mit Helmut Frahs. Er pflegt seine an ME/CFS erkrankte Tochter.

Radio Dreyeckland
Strange when politicians who've said nothing about Long COVID, not even on #LongCovidAwarenessDay, are congratulating themselves on their public health leadership
So sieht der #LongCovidAwarenessDay, den ich wegen Crash verpasst habe, in Canada aus. Bin geflasht.

RE: https://zeroes.ca/@broadwaybabyto/116235741417304188

unsurprisingly I was down for the count with a migraine this #LongCovidAwarenessDay

do I know for sure it was COVID that made my migraines devastatingly worse? no. is it a likely factor? yup

I had an N95 on when I was exposed, I now wear a respirator ever since, and am saddened by the lack of awareness around airborne diseases. this shit is preventable, y'all

Can't believe how pretty my province is right now all lit for Long Covid. A powerful reminder that this issue is far from gone 🩵 Photo credits: 📸 Long Covid Foundation BC Parliament Science World/BC Place Canada Sails of Light With thanks to @[email protected] #LongCovidAwarenessDay

it’s #LongCovidAwarenessDay

it’s 3.5 years since my first and only known #covid infection

and i’m still sick.
still picking up the pieces.
still adjusting to my new “normal”.

heart rate alert from my watch from just standing in the kitchen after climbing the 4 steps into our house.

It’s Long Covid Awareness Day.

This year marks 3 years of living with it for me… and my health continues to be precarious.

I do my best to walk through life in the present and to manage what I’m able to - while relentlessly advocating for myself in the Canadian* medical system.

If this sounds like you too… know that you’re not alone. I see you.

#LongCovid #MECFS #POTS #LongCovidAwarenessDay

*added for clarity. I also do not currently have any spoons, I’m minus spoons and bed ridden, so I cannot reply to DMs.

Reminder for Long Covid Awareness Day:

Some research studies have found many Long Covid cases meet diagnostic criteria for ME/CFS. And many of those folks never recover.

Your risk of getting Long Covid goes up with each COVID infection. The best way to avoid Long Covid is to avoid getting a COVID infection -- get the vaccine/booster, wear a mask, improve ventilation, etc.

comic source = https://cfsgraphics.com/graphics-21

#LongCovidAwarenessDay #LongCovid #MEcfs #CovidIsNotOver #MaskUp

@bebatjof
For that matter, covid is SARS2; did anyone ever check back how the survivors of the original SARS were doing a decade later?

(spoiler: they did, it wasn't good)

#LongCovid #LongCovidAwarenessDay