I’ve been doing so well for a long while now, and started pushing my workouts into interval training (still carefully guided by a coach). Something happened, maybe too much garden work + workouts + work is busy + <whatever we can call the state of the world>, has all added up to several days of dizziness returning. Not too much, as I’m cutting back activity, but it’s not what I want to revisit. Covid is most definitely not over. #LongCovid

Primary Health Care Resource for Adults with Long COVID

#LongCovid @longcovid

"A Victoria University of Wellington team has launched a resource for GPs, following co-design workshops to understand patient experiences of illness and care."

https://www.wgtn.ac.nz/fehps/centres/health-services-research-centre/recent-projects/evidence-based-management-of-long-covid/management-of-long-covid-in-primary-care/Resource-for-GPs-2026.pdf

https://youtu.be/ym8KZJRORdI

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

🧪 Finally out: one of 3 studies (Amsterdam, Yale, Namur) showing transfer of IgG from #LongCOVID patients induces symptomology in mice: Cell Reports Medicine www.cell.com/cell-reports...

Transfer of IgG from long COVI...

Feels good to get back to writing up some music, although actual ukulele playing is still limited. Long Covid exhaustion has really thrown a spanner in the works when it comes to hobbies; or to anything else, for that matter.

Of course, after that burst of limited activity I'm now good for nothing at all, but spending half my time napping is not what I want to do.

#LongCovid #Ukulele

#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ?

Advocacy opportunity 📣 Pre-register to present directly to BC gov about YOUR priorities for the next provincial budget!

The registration deadline is Friday, April 10 at 2pm: https://consultation-portal.leg.bc.ca/consultations/195 Presenting can be done virtually; they’ll follow up in May about whether you’ve been selected. Additional written input options will open in June.

This is a great chance to speak directly to policy-makers if you want things like:

💨 #CleanAir
🩺 #LongCovid care
💩 wastewater monitoring
😷 N95s for healthcare workers
🧪 free rapid tests past 2026
💉 ongoing vaccine access including #Novavax

Let’s tell BC gov to put their money where their mouth is, when it comes to protecting the health of British Columbians!

#BCBudget #BCBudget2027 #BCpoli #BCHealthcare #Covid19BC #PublicHealth #CovidIsNotOver #CovidIsAirborne #NovavaxNow

Cadeau-artikel Follow the Money:
(Met deze link kun je het artikel binnen 24 uur gratis lezen).

'Post-covidpatiënten waren inderdaad proefkonijn in medicijn­experiment, stelt commissie'

"Het onderzoek naar het oude verdovingsmiddel lidocaïne in de behandeling van post-covid had niet mogen starten zonder ethische toets vooraf. Tot die conclusie komt de onafhankelijke commissie voor medisch-wetenschappelijk onderzoek."

https://www.ftm.nl/artikelen/post-covidpatienten-waren-inderdaad-proefkonijn-in-medicijnexperiment-stelt-commissie?utm_medium=social&utm_campaign=sharebuttonleden&utm_source=mastodon&share=9WVwPO9Q1ls46EhVAufW/exIfDFk3XsUw3eCWCgXeq4GTwt7dTc7Ahr2yb9mQjQ=

#gezondheid #LongCovid #PostCovid #lidocaine #ExcellentCareClinics

@longcovid

Post-covidpatiënten waren inderdaad proefkonijn in medicijn­experiment, stelt commissie

Het onderzoek naar het oude verdovingsmiddel lidocaïne in de behandeling van post-covid had niet mogen starten zonder ethische toets vooraf. Tot die conclusie komt de onafhankelijke commissie voor medisch-wetenschappelijk onderzoek. De uitvoerders van de studie, artsen van pijnkliniek Excellent Care Clinics, wacht mogelijk een hoge boete of zelfs een gevangenisstraf.

Follow the Money - Platform voor onderzoeksjournalistiek

World Health Network @thewhn.bsky.social

Every COVID-19 infection carries a risk of Long COVID - affecting the brain, heart, lungs, and immune system in ways that can last months or longer.

Prevention still works.

- Masking: Wear a high-quality mask (N95 or better) to reduce spread
- Ventilation: Bring in fresh air and use HEPA filtration indoors
- Distancing: Reduce crowding, use hybrid/remote options when possible
- Testing: Test early and often
- Vaccination: Helps protect against severe illness, especially with other measures

#PublicHealth #COVIDIsNotOver #COVID #COVID19 #LongCOVID #LongCOVIDAwareness

Source: https://bsky.app/profile/thewhn.bsky.social/post/3mhqpk2zvl225

I need tips for apartment hunting while COVID cautious!

I’m losing my housing and the stress of it has utterly destroyed my baseline. It’s so difficult to find safe housing as a disabled individual.

I’ve finally found a few units to view, but my concern is if I wear my respirator I can’t adequately assess smells and triggers like mold or VOCs.

My MCAS is very severe. I usually know quite quickly if I’m going to react to a space … but I can’t always tell right away when I’m masked up.

No one is living in the units so they will be empty and it’s just me and one other person going to the viewing.

If I can convince that person to wear an N95 and keep their distance… do you think it’s safe if I remove my mask for a few minutes?

I basically just want to smell around things like the hvac, under sinks, anywhere there’s plumbing and the walls in case there’s been new paint.

I know it might be moderately risky but it would be catastrophic to get locked into a year lease somewhere making me sick.

Appreciate any tips if there’s something I’m not thinking of!

#COVIDcautious #covidisnotover #covidisairborne #longcovid #n95 #disability #ableism