Primary Health Care Resource for Adults with Long COVID
"A Victoria University of Wellington team has launched a resource for GPs, following co-design workshops to understand patient experiences of illness and care."
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
Feels good to get back to writing up some music, although actual ukulele playing is still limited. Long Covid exhaustion has really thrown a spanner in the works when it comes to hobbies; or to anything else, for that matter.
Of course, after that burst of limited activity I'm now good for nothing at all, but spending half my time napping is not what I want to do.
Advocacy opportunity 📣 Pre-register to present directly to BC gov about YOUR priorities for the next provincial budget!
The registration deadline is Friday, April 10 at 2pm: https://consultation-portal.leg.bc.ca/consultations/195 Presenting can be done virtually; they’ll follow up in May about whether you’ve been selected. Additional written input options will open in June.
This is a great chance to speak directly to policy-makers if you want things like:
💨 #CleanAir
🩺 #LongCovid care
💩 wastewater monitoring
😷 N95s for healthcare workers
🧪 free rapid tests past 2026
💉 ongoing vaccine access including #Novavax
Let’s tell BC gov to put their money where their mouth is, when it comes to protecting the health of British Columbians!
#BCBudget #BCBudget2027 #BCpoli #BCHealthcare #Covid19BC #PublicHealth #CovidIsNotOver #CovidIsAirborne #NovavaxNow
Cadeau-artikel Follow the Money:
(Met deze link kun je het artikel binnen 24 uur gratis lezen).
'Post-covidpatiënten waren inderdaad proefkonijn in medicijnexperiment, stelt commissie'
"Het onderzoek naar het oude verdovingsmiddel lidocaïne in de behandeling van post-covid had niet mogen starten zonder ethische toets vooraf. Tot die conclusie komt de onafhankelijke commissie voor medisch-wetenschappelijk onderzoek."
#gezondheid #LongCovid #PostCovid #lidocaine #ExcellentCareClinics

Het onderzoek naar het oude verdovingsmiddel lidocaïne in de behandeling van post-covid had niet mogen starten zonder ethische toets vooraf. Tot die conclusie komt de onafhankelijke commissie voor medisch-wetenschappelijk onderzoek. De uitvoerders van de studie, artsen van pijnkliniek Excellent Care Clinics, wacht mogelijk een hoge boete of zelfs een gevangenisstraf.
World Health Network @thewhn.bsky.social
Every COVID-19 infection carries a risk of Long COVID - affecting the brain, heart, lungs, and immune system in ways that can last months or longer.
Prevention still works.
- Masking: Wear a high-quality mask (N95 or better) to reduce spread
- Ventilation: Bring in fresh air and use HEPA filtration indoors
- Distancing: Reduce crowding, use hybrid/remote options when possible
- Testing: Test early and often
- Vaccination: Helps protect against severe illness, especially with other measures
#PublicHealth #COVIDIsNotOver #COVID #COVID19 #LongCOVID #LongCOVIDAwareness
Source: https://bsky.app/profile/thewhn.bsky.social/post/3mhqpk2zvl225
I need tips for apartment hunting while COVID cautious!
I’m losing my housing and the stress of it has utterly destroyed my baseline. It’s so difficult to find safe housing as a disabled individual.
I’ve finally found a few units to view, but my concern is if I wear my respirator I can’t adequately assess smells and triggers like mold or VOCs.
My MCAS is very severe. I usually know quite quickly if I’m going to react to a space … but I can’t always tell right away when I’m masked up.
No one is living in the units so they will be empty and it’s just me and one other person going to the viewing.
If I can convince that person to wear an N95 and keep their distance… do you think it’s safe if I remove my mask for a few minutes?
I basically just want to smell around things like the hvac, under sinks, anywhere there’s plumbing and the walls in case there’s been new paint.
I know it might be moderately risky but it would be catastrophic to get locked into a year lease somewhere making me sick.
Appreciate any tips if there’s something I’m not thinking of!
#COVIDcautious #covidisnotover #covidisairborne #longcovid #n95 #disability #ableism