I am very interested in research w routinely collected and otherwise available data and look forward to #IQOQOL's Measuring What Matters Symposium on the role of patient-reported outcome measures in Australia's clinical #registries in oncology:
https://www.isoqol.org/register-today-for-the-2023-measuring-what-matters-symposium/
Overview of clinical registries in Oncology and Patient-reported outcomes data
International examples of PROMs in oncology clinical registries
The role of clinical registries in integrating PROMs into clinical care