A Nurse’s Journey Through Endometrial Cancer and Life After Hysterectomy

📰 Original title: My Doctor Took One Look At My Watermelon-Sized Tumor And Said 6 Words. He Couldn’t Have Been More Wrong.

🤖 IA: It's clickbait ⚠️
👥 Usuarios: It's clickbait ⚠️

View full AI summary: https://killbait.com/en/a-nurses-journey-through-endometrial-cancer-and-life-after-hysterectomy/?redirpost=a4591a01-f519-4415-96b2-f558a9689360

#health #endometrialcancer #hysterectomy #cancerawareness

Finally got my surgery on Monday for a #hysterectomy

In true Jax fashion, I have spent every spare moment over the last 3 months reading and researching everything about the surgery and risk factors.

The surgery is due to a 12cm #ovariancyst and #adenomyosis thankfully both ovaries and uterus tested clear for cancer.

Scheduled surgery is for a total laparoscopic hysterectomy, but after careful consideration I want them to keep my cervix intact, as I am high risk for future prolapse but low risk for cervical cancer ( I don't have sex with men for a start!).

I've tried to get a telephone conversation with surgeon 5 times over the last 2 weeks and still not had a call back.

After 5 years of medical gaslighting I am not confident or strong enough for a battle to keep my cervix on the day of admission. I'm already not sleeping and seriously stressed about this!

Last attempt to get a callback tomorrow and I will be letting them know that if I don't get a conversation with surgeon by end of day Friday, I won't be admitting myself for surgery on Monday.

It shouldn't be this hard 😭

Did a new year #tarot reading for myself and one for my teenage daughter last night. Very interesting that both readings pointed to being open to new things and not allowing fear to hold us back. We’re a team so this tracks, and we both have lots of good stuff coming in 2026!

I’m having a very large ovarian cyst removed with a full #hysterectomy in a few weeks, then plan to get back to being the me I love and form a new band (probably blues rock).

My daughter is starting uni this year at 16 (so fucking proud) to do a music degree.

Let the bells ring 😂🤘🤘🤘

Was supposed to be having surgery tomorrow (#hysterectomy ) which I’ve cancelled due to a chesty cold. Nurse basically told me I could still go in as ‘imagine if everyone with a cold this time of year cancelled’

I love and respect the #NHS but I’m not going in for major surgery when I’m unwell.

What if I have #covid ???

So anyway basically said nope not happening and got a new date for 5th Feb 👍

Opening up the floor: #perimenopause pals, who out there post #hysterectomy on #HRT? What are your doses and do you take "breaks" for a few days from any of it?

Especially wanna hear from folks with #PCOS and #endometriosis like me, and bonus if like me, still in possession of one ovary.

Please repost for reach.

Having surgery to remove 12cm #ovariancyst and a full #hysterectomy on the 20th December!

This is good - timing is a bit off but it's all good. Then I can finally start getting my mobility and life back!

I just found out yesterday that Vermont guarantees the right to contraceptives & sterilization in their constitution. I feel so dumb that I got excited about NH HB606 when we could have just gone to Vermont. (HB 606 will still help women who can’t go out of state for whatever reason but how was I so uninformed??)

Also the link claims to contain a list of providers that will do sterilization procedures on people who are 21 years old regardless of their family status, so they presumably would help trans people who want to be sterilized who don’t have a medical condition like 606 requires.

VT constitution guarantees "That an individual's right to personal reproductive autonomy is central to the liberty and dignity to determine one's own life course and shall not be denied or infringed unless justified by a compelling State interest achieved by the least restrictive means."

18 V.S.A. § 9493: (a) The State of Vermont recognizes the fundamental right of every individual to choose or refuse contraception or sterilization.

https://www.pagingdrfran.com/resources

**I have seen Courtney Jones, Concord NH & while she was obsessed with giving me a hysterectomy (yay!) she was not at all helpful with perimenopause & she told me to my face that my vomit level migraines were not due to my menstrual cycle at all until neurology did then she pretended she had been saying that all along, so don’t see her-she’s a gaslighter.**

#TransHealthcare #childfree #VT #hysterectomy #TubalLigation #BirthControl #vermont #WomensHealthcare #vasectomy #DrFran
#ReproductiveRights

At 19 I was told my health came second to my future husband.

At 22 I was told I would feel differently once I was “in love”

At 24 my boyfriend was asked if he would still love me if I couldn’t bear children.

My autonomy was violated for 5 years for a hypothetical baby

I had severe endometriosis and adenomyosis. My periods hell. They were irregular, heavy and painful. I would lay on the bathroom floor in unrelenting pain, throwing up and too weak to move.

As the years dragged on I became more disabled from the pain and anemia.

Surgeries to control the blood loss failed.

Medications to put me into chemical menopause failed.

Birth control pills failed.

I needed a hysterectomy.

I had never wanted children. I wasn’t even sure I wanted marriage. I was also far too disabled to get pregnant or raise a child.

So I asked for the surgery. I asked my doctors to remove the diseased organ destroying my quality of life.

I was firmly told “No” because I might meet a man who wants kids.

That even though I was too sick to survive pregnancy and likely infertile, I couldn’t make the choice to remove my womb in case I changed my mind when I met my dream man.

I told the doctors I didn’t want kids, it didn’t matter.

I pointed out I was too sick to care for myself, let alone a child, and it didn’t matter.

I said that my “dream man” would love me even if I couldn’t have kids, and the doctors laughed.

I had no bodily autonomy.

Medical misogyny was ruining my life.

I spent the next few years getting second and third opinions. Fighting like hell to get the surgery I knew I needed to have any shot at a “normal” life. When I began dating someone, I brought him to my appointments hoping he could convince them to operate.

They asked him if he would love me if I couldn’t give him biological children. He didn’t want kids either, but they said the same thing to him they kept saying to me: “You might change your mind”

Why is the medical system so obsessed with us having babies? Misogyny and patriarchy.

We could have changed our minds. We could have also broken up.

What “could” happen in the distant future should never be given more weight than what was happening in the present.

I was slowly dying. Bleeding to death and confined to bed. Relying on blood and iron transfusions to survive.

I tell this story every few months because I think it’s incredibly important we talk about our lack of autonomy.

The post Roe landscape is putting our lives in danger, and my story can hopefully help people understand why.

If I wasn’t able to make the choice I needed for my body when there was no fetus involved, imagine how hard it must be for pregnant people who need to access abortion?

Forced birth advocates love to trumpet the “exemption for the life of the mother” rule to justify abortion bans

But if doctors weren’t willing to remove my uterus when it was literally killing me, why are we trusting they will terminate a pregnancy when the mother’s life is at risk?

A hypothetical baby came before my life… imagine what would happen if there was a real fetus involved?

We know what happens.

Women die.

They bleed out in parking lots.

They become septic, lose their fertility or spend months fighting for their lives in the ICU.

Their care is delayed because the fetus comes first. And delayed care comes at a cost.

I finally got my hysterectomy, but only because I was bleeding out in the ER and transfusions couldn’t keep up.

By the time they finally gave me the surgery I spent years asking for, my survival odds were only 50/50.

Had they done it when I asked, it would have been 99%

It’s the same thing for those experiencing miscarriage or abortion complications.

If they could get timely healthcare, their odds of survival would be excellent.

When we tell doctors they can’t intervene until the life of the mother is “clearly” in jeopardy?

That’s when we start dying.

We deserve better. We need full autonomy over our reproductive systems, and that includes access to sterilization and abortion.

It’s time.

More on what my hysterectomy taught me about medical misogyny:

https://www.disabledginger.com/p/what-my-hysterectomy-taught-me-about

#uspol #fascism #hysterectomy #abortion #AbortionRights #reproductiverights #misogyny #patriarchy