Triple ⁂Learnt today that the kid (age 2,5) might need ear aids after all, although we had ruled this out a few months ago. We are already in the process of getting her glasses and an orthopedic corset, and I can't help but think that this is all a bit a lot. While knowing it won't get better.
One of the things that bring joy in my life is to cook and ferment foods. At the moment I have a couple of misos in progress plus my first batch of shoyu.
2 years ago I became a father of a kid with #HurlerSyndrome (MPS 1), a rare, poorly documented and treated degenerative sickness. She's been through a #StemCellTransplant and is spending a lot of time in the hospital. I will post about this topic too.
I boost toots a lot, so be ready to see a lot of posts by others when you follow me.
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