Today ends #Grin2B Awareness Week, always a good excuse to share an adorable photo of me and my niece Lucy, pictures here goofing around with Barbie glasses at an Oscars party. Lucy and only around 649 other people on this earth have alterations to the Grin2B gene, which causes development disabilities and other challenges. Her parents have created a foundation that's done amazing things in just a few years, including launching clinical trials this year! You can learn more at
http://grin2b.com/
If you're googling Grin2B because someone you know has been diagnosed and this post came up, please message me and I'll put you in direct contact with Lucy's parents who can get you hooked up into the community! (I know what are the chances but it actually happened once!)
Home | GRIN2B Foundation

Welcome to GRIN2B Foundation! Our goal is to offer support and share research to the small but growing community of children diagnosed with alterations in their GRIN2B gene.

GRIN2B Foundation

Reminder this weekend you have the chance to see the smiles of Uncle @andymarfia Aunt Jenny and Lucy in action at 4th Annual Chicagoland Bee Active for GRIN2B Walk, Run & Roll! on Sat, 9/16 at Maine East High School! All are welcome to come out for this fun free walk - there will be an ice cream truck too!

Donations benefit the Grin2b Foundation which Lucy's parents founded after her diagnosis to help support people with the ultrarare neurodevelopmental disorder known as GRIN2B. If you want to donate, here's our team fundraising page - https://bit.ly/2023Walk-Lucy

#grin2b #grin2bawareness

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Bee Active for GRIN2B : Make a donation today to support GRIN2B Foundation

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