#Dementia
#ElderlyRelative has July #Bookclub with #BoySwallowsUniverse.
They've done hrs listening to the #Audiobook and watching/listening to reviews, interviews & discussions.
And we've made up and sung songs about the plot and relationships between characters.
But #Recall level is still pretty low.
So now they're trying watching the Netflix series based on the book.
Opening scenes were thug-life violence. Neither of us were keen to continue.
But they did.
1/?
And this month we, (me & #ElderlyRelative, #Blind & with #Dementia) are prepping for a #BookClub meeting on #BoySwallowsUniverse.
The #Audiobook performer is pretty much perfect. #StigWemyss is not raising even yellow flags based on what I know of teenagers in #Brisbane's junkie-criminal culture. (Not firmly based, past hearing two fellow Brisbane train passengers discussing how best to drink metho, & media coverage of violence.)
An #ElderlyRelative and I are studying up on #NiallWilliamson's #TimeOfTheChild.
Seeking a scaffold. Starting with short videos of the author.
... fable is between two raindrops ...
... a series of novels ...
cf #AlanMoore & the #LongLondon series.
#Audiobook performed by #DermotCrowley. #Bookstadon
I'm off to inspect a room in an aged care facility possibly for an #ElderlyRelative.
And I get to ask questions.
Please tell me what questions you'd ask.
Even questions you might think of avoiding asking.
I'll be Replying to this toot with some of the #AgedCareQuestions I come up with too.
(This #AgedCareFacility / #NursingHome is in #Australia. The standard of care here is much lower than the USA AIUI.)
Autonomy & Manipulation
This stuff is more complex than I'd thought.
I've bought a #RedPlate and now an #ElderlyRelative is not rejecting their meal, or rejecting it so much less that all of it gets eaten.
I'd like to hear from other carers and also parents on when you think manipulation is ok, when it fits with autonomy, when it doesn't, when it's not ok, and things like that.
#NewPipe, the #Android youtube tamer, is no longer offering audio downloads.
This is a reduction in accessibility for my #ElderlyRelative.
Want to get blocked?
Tell me that Google/Youtube has the right to do whatever they like around #Accessibility.
There are a lot of apps like Uber, DiDi, YT, that are significant barriers to disabled and frail aged folk partucipating in the community.
We need stronger government regulations.
An #ElderlyRelative is heartily sick and tired of taking 5 x #FishOil capsules the size of footballs (hyperbole).
Today the first dessert spoonful of fish oil went down in seconds with no drama.
#TileApp : Been using this and their Tile hardware to help in finding lost and hidden items for a blind forgetful #ElderlyRelative.
The bastards at Tile have taken to putting a damned advert at the top of their Android app open page.
Thereby making it impossible for the elderly person to use the app.
Greed, ignorance, don't-give-a-fuck, whatever.
A shit company, a shit product, a shit UX.
And you've modelled calling for help early.
Rather than late, or too late.
Thanks for sharing.
I'll apply this on the water, and it'll fit in well with #AgedCare for an #ElderlyRelative.
#ElderlyRelative seemed to need more care to #AgeInPlace.
Hours were put in to get assessment, approval and provision of a largely government funded #AgedCare package and then the support started being delivered.
Which increased, not decreased, the load on family carers.
Then a minor car crash, just enough to fracture sternum, while getting support service.
Then pain, and step-downs in memory and succeeding at multi-step tasks.
Family carers get workload tripled.
#WhatCouldGoWrong not asked.
skua