Miikka VikkulaMar 18
Our latest review, 'Current and Emerging Pharmacotherapies for Vascular Malformations', is online. First 50 can download the PDF for free via the link. Thank you, Emmanuel Seront, for putting it together! #VASCAPA #HEVAS #CMTC #VASCERN #RADIOORG #EURORDIS #EVBO #WELRI
https://www.tandfonline.com/eprint/QGPRVVUI8GUT6FQEJFQI/full?target=10.1080/17512433.2026.2641807
Miikka VikkulaMar 18

What a great #VASCERN-VASCA meeting. Thank you Roberta, Thi-Mai et Treasure for the organisation. And all those having presented the steps made forward in the various task forces. Looking forward to the follow-up of all the action points. #vascapa #hevas #cmtc #vascern #radiorg #eurordis

https://www.facebook.com/100069557370933/videos/pcb.1250340800627821/27316982817890243

VASCERN: The ERN on rare multisystemic vascular diseases on Reels

joboFeb 28

Der #Tag_der_seltenen_Erkrankungen findet am letzten Tag im Februar statt. Der Tag wurde 2008 von #EURORDIS ins Leben gerufen und nach dem beitritt der USA im Jahre 2009 wurde er langsam zu einem #internationalen Tag mit aktuell über 80 teilnehmenden Ländern.
https://welcher-tag-ist-heute.org/aktionstage/tag-der-seltenen-erkrankungen
https://www.achse-online.de/achse-aktiviert/aktionen-kampagnen/tag-der-seltenen-erkrankungen-2026

#Aktionstag

Heute ist Tag der seltenen Erkrankungen!

Der Tag der seltenen Erkrankungen findet am letzten Tag im Februar statt. Der Tag wurde 2008 von EURORDIS ins Leben gerufen und nach dem beitritt der USA im ...

Welcher Tag ist Heute?
Miikka VikkulaFeb 24
It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC
Miikka VikkulaFeb 11
The VAS European Book on Angiology/Vascular Medicine (ISBN: 978-3-031-82232-2) is now published accessible in print and online ! #VASCAPA #HEVAS #CMTC #VASCERN #EURORDIS
Miikka VikkulaDec 17

Congratulations, Emmanuel, on this online publication showing how #sirolimus treatment can be adapted to patients' needs. Most #patients with #slow-#flow #vascular #malformations benefit to some extent, and many experience significant #symptom reduction even with #intermittent dosing. This is a big step forward in the #multimodal management of vascular malformations. #VASCERN #VASCAPA #CMTC #HEVAS #WELRI #ISSVA #EVDays #deduveinstitute #Leducq #Radiorg #Eurordis #Lymph

https://link.springer.com/article/10.1186/s13023-025-04151-y

Miikka VikkulaDec 15
The virtual #European #Angiology Days (EADays) 2025 are just over. Great presentations and discussions. And easy access - no travel !! Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO
Miikka VikkulaDec 15
Congratulations to all three young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days (EADays) 2025 event: Dr #Annegret Holm , Dr Jennilyn Mangulabnan, and Dr Julie Anne Miralles-Amora. Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC #EURORDIS #ISSVA #NAVBO #EVBO
Miikka VikkulaDec 15
Congratulations Peyman for the identification of associations between #variants in #spliceosomal genes and the occurrence of #cleft #lip and #palate. A #complex disease and #heterogeneous underlying pathophysiology. #Radiorg #eurordis #CLP #WELRI https://onlinelibrary.wiley.com/journal/humu/
Miikka VikkulaDec 5
So great 2 days at the #French Society of #Lymphology 2025 in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. The field is moving along faster than ever. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg #lymph #LM #ISSVA